癫痫患者群体的多样性和服务不足。

Q1 Medicine
Dave F Clarke
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引用次数: 0

摘要

目的:尽管在癫痫管理方面取得了进展,但差异和缺乏对许多癫痫患者的纳入与发病率和死亡率增加有关。使这些问题更加复杂的是卫生保健提供者、研究参与者和研究人员之间缺乏多样性。本文将探讨这个问题以及潜在的解决方案。最新进展:在最近社会正义事件的推动下,患者倡导团体、癫痫协会以及国家神经疾病和中风研究所、美国疾病控制和预防中心以及癫痫和其他神经疾病部门间全球行动计划等理事机构已提出倡议,以改善癫痫治疗方面的差距。公共卫生癫痫研究继续暴露不足和差距。提高对卫生保健差距和技术进步的认识,应有助于促进更好的癫痫保健公平和包容性。要点:为了向癫痫患者提供及时、有效的护理,我们必须了解获取服务的社会人口障碍。这些因素包括历史决定因素、无意识偏见和缺乏多样性等混杂因素。提高认识和促进研究参与的多样性可以促进对服务不足人群的治疗,并改善信任。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Diversity and Underserved Patient Populations in Epilepsy.

Objective: Despite advancements in epilepsy management, disparities and lack of inclusion of many people with epilepsy are associated with increased morbidity and mortality. Compounding these problems is the paucity of diversity among health care providers, research participants, and researchers. This issue as well as potential solutions are explored in this article.

Latest developments: Prompted by recent social justice incidents, patient advocacy groups, epilepsy societies, and governing bodies such as the National Institute of Neurological Disorders and Stroke, US Centers for Disease Control and Prevention, and the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders have proposed initiatives to improve disparities in epilepsy care. Public health epilepsy research continues to expose deficiencies and disparities. Increased awareness of health care gaps and technologic advances should help foster improved epilepsy health equity and inclusivity.

Essential points: To deliver timely, effective care for people with epilepsy, we must be knowledgeable of sociodemographic obstacles to access. These include confounding factors such as historical determinants, unconscious bias, and lack of diversity. Improving awareness and promoting diversity in research participation can advance treatment for underserved populations and improve trust.

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来源期刊
CiteScore
5.80
自引率
0.00%
发文量
175
期刊介绍: Continue your professional development on your own schedule with Continuum: Lifelong Learning in Neurology®, the American Academy of Neurology" self-study continuing medical education publication. Six times a year you"ll learn from neurology"s experts in a convenient format for home or office. Each issue includes diagnostic and treatment outlines, clinical case studies, a topic-relevant ethics case, detailed patient management problem, and a multiple-choice self-assessment examination.
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