IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Karen la Cour, Lisa Gregersen Oestergaard, Marc Sampedro Pilegaard
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引用次数: 0

摘要

背景:目的:本研究探讨晚期癌症患者如何管理他们的日常活动,并描述他们的具体策略:定性研究采用探索性方法。从一项试验中提取了 28 名晚期癌症患者的数据,其中包括定性访谈,以了解参与者对日常活动管理的看法。访谈在参与者家中进行,采用归纳式主题分析法进行分析:结果:在保持 "日常生活如常 "这一总主题下,研究结果揭示了参与者在 "坚持常规 "和 "活动适应 "这两个次主题中确定的具体策略。坚持常规生活涉及 1) 个人护理和家务,2) 休闲、社交和工作生活。活动适应则涉及 1) 克服身体上的限制;2) 分享、委托和放手;以及 3) 寻求 "外部 "支持:本研究明确了参与者在日常活动和活动适应方面具体而独特的自我发展策略。这些策略反映了参与者在缓解疼痛和哀悼的同时保持功能的需求,这对于在姑息治疗中整合康复服务,以人为本地制定干预措施具有重要的参考价值。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Everyday activity strategies perceived by people with advanced cancer: a qualitative explorative study.

Background: Despite growing research on the daily life of people with advanced cancer, more specific knowledge is needed about the specific strategies these people use to manage everyday activities.

Purpose: This study explores how people with advanced cancer manage their everyday activities and describe their specific strategies.

Methods: The qualitative study was designed with an explorative approach. Data from 28 people with advanced cancer was drawn from a trial including qualitative interviews to elicit participants' perceptions about managing their everyday activities. Interviews were conducted in participants' homes and analysed using an inductive thematic analysis.

Results: Within an overarching theme of keeping 'Daily life as usual', the findings unfold participants' specific strategies identified within two sub-themes ', Upholding routines' and 'Activity adaptations'. Upholding routines related to 1) Personal care and household and 2) Leisure-, social- and work-life. Activity adaptation about 1) Working with and around physical limitations; 2) Sharing, delegating, and letting go; and 3) Enlisting 'outside' support.

Conclusion: This study specified participants' specific and distinct self-developed strategies within routines and activity adaptations. The strategies reflect participants' needs for maintaining functioning while relieving pain and mourning, which holds essential potential for informing person-centred intervention development integrating rehabilitation in palliative care.

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来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
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