倾听沉默与沉默:黑人艾滋病妇女喂养婴儿的经验与实践的合作研究。

IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Bakita Kasadha, Shema Tariq, Angelina Namiba, Nell Freeman-Romilly, Neo Moepi, Gillian Letting, Tanvi Rai
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引用次数: 0

摘要

在英国,每年有多达700名艾滋病毒感染者分娩;大多数是非洲黑人移民的顺性别女性。对于携带艾滋病毒的父母来说,喂养婴儿的决定是复杂的,需要父母权衡通过母乳传播艾滋病毒的小风险,以及英国推荐配方奶的指南,与强烈的个人和社会对母乳喂养的期望。我们在一项定性研究中探讨了这种情况。在本文中,我们讨论了我们的经验,共同开展我们的研究婴儿喂养经验和做法的妇女艾滋病毒。我们特别关注我们的方法、工作实践和团队结构如何使我们能够听到并描述我们的社会边缘化研究参与者所面临的“沉默”和“尖叫沉默”。对于参与者来说,必须在更广泛的背景下,与那些基本上没有意识到这一决定对他们的现实可能产生破坏性影响的人一起,对婴儿喂养产生强烈的多方面焦虑。我们的跨学科研究小组和咨询小组由感染艾滋病毒的妇女、临床医生、政策制定者和学者组成;其中大多数是少数族裔妇女。通过定期的团队会议,尊重所有贡献者的不同观点和不同的传播途径,我们与广泛的利益相关者保持了关系伦理,并影响了国家政策。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Hearing the Silence and Silenced: Co-Producing Research on Infant-Feeding Experiences and Practices With Black Women With HIV.

In the UK, up to 700 people with HIV give birth annually; the majority are Black African migrant cisgender women. Infant-feeding decisions for parents with HIV are complex, requiring parents to weigh-up the small risk of HIV transmission via breastmilk and UK guidelines recommending formula milk, against strong personal and societal expectations to breastfeed. We explored this situation in a qualitative study. In this paper, we discuss our experiences of co-producing our research on infant-feeding experiences and practices among women with HIV. In particular, we focus on how our methodology, working practices and team structure enabled us to hear and describe the 'silences' and 'screaming silences' faced by our socially marginalised study participants. For the participants, intense multidimensional anxieties regarding infant-feeding had to be managed within a wider context and with people who were largely unaware of the potentially devastating impact that decision had on their reality. Our interdisciplinary study team and advisory panel comprised women with HIV, clinicians, policymakers and academics; the majority were racially minoritised women. Through regular team meetings, respect for the varied perspectives of all contributors and diverse dissemination routes, we sustained relational ethics with a broad range of stakeholders and impacted national policy.

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来源期刊
CiteScore
6.10
自引率
6.90%
发文量
156
期刊介绍: Sociology of Health & Illness is an international journal which publishes sociological articles on all aspects of health, illness, medicine and health care. We welcome empirical and theoretical contributions in this field.
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