在线健康社区中癌症患者寻求帮助行为的决定因素：来自中国的证据

IF 3.7 2区医学 Q2 COMPUTER SCIENCE, INFORMATION SYSTEMS

International Journal of Medical Informatics Pub Date : 2024-12-16 DOI:10.1016/j.ijmedinf.2024.105767

Xiandong Feng , Yinhuan Hu , Holger Pfaff , Sha Liu , Hui Wang , Zhen Qi

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引用次数: 0

摘要

目的：尽管在线健康社区为患者互动提供了一种新的途径，但癌症患者在这些平台上的求助行为仍未被探索。本研究旨在找出影响癌症患者网路求助行为的决定因素。方法：基于动机理论，提出六个假设，建立研究模型。数据收集自1100名癌症患者，这些患者于2023年3月、6月和9月在中国一个领先的在线癌症社区寻求帮助。我们使用固定效应负二项模型来检验研究假设。结论：本研究拓宽了对癌症患者如何在数字环境中寻求帮助的理解，并增强了对这些行为的理论见解。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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The determinants of help-seeking behaviors among cancer patients in online health communities: Evidence from China

Objective

Although online health communities offer a new approach to patient interaction, the help-seeking behaviors of cancer patients within these platforms remain unexplored. This study aims to identify the determinants influencing online help-seeking behaviors among cancer patients.

Method

Based on motivation theory, we proposed six hypotheses and developed a research model. Data were collected from 1100 cancer patients who sought help in a leading Chinese online cancer community in March, June, and September 2023. We used the fixed-effect negative binomial model to test research hypotheses.

Results

The findings indicated that the time since diagnosis (β = -0.127, P < 0.001) was negatively associated with online help-seeking behaviors among cancer patients. In contrast, social support (β = 0.002, P = 0.003) and disease stigma (β = 0.170, P < 0.001) positively influenced their help-seeking behaviors in online health communities. Furthermore, while male and female cancer patients showed decreased help-seeking behaviors as time since diagnosis increased, the decline was less pronounced for females (β = 0.040, P < 0.001). The positive impact of disease stigma on help-seeking behaviors is stronger for female patients than male patients (β = 0.098, P < 0.001).

Conclusion

This research broadens the understanding of how cancer patients seek help in digital environments and enhances theoretical insights into these behaviors.

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来源期刊

International Journal of Medical Informatics 医学-计算机：信息系统

CiteScore

8.90

自引率

4.10%

发文量

217

审稿时长

42 days

期刊介绍： International Journal of Medical Informatics provides an international medium for dissemination of original results and interpretative reviews concerning the field of medical informatics. The Journal emphasizes the evaluation of systems in healthcare settings. The scope of journal covers: Information systems, including national or international registration systems, hospital information systems, departmental and/or physician''s office systems, document handling systems, electronic medical record systems, standardization, systems integration etc.; Computer-aided medical decision support systems using heuristic, algorithmic and/or statistical methods as exemplified in decision theory, protocol development, artificial intelligence, etc. Educational computer based programs pertaining to medical informatics or medicine in general; Organizational, economic, social, clinical impact, ethical and cost-benefit aspects of IT applications in health care.