隐藏在暗处的法医遗传学。

IF 2.5 2区 哲学 Q1 ETHICS
Journal of Law and the Biosciences Pub Date : 2024-12-23 eCollection Date: 2024-07-01 DOI:10.1093/jlb/lsae028
Teneille Brown, Sarah Duensing, Bob Wong
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引用次数: 0

摘要

本文探讨了执法机构在没有手令或同意的情况下搜索医疗机构获得的基因样本的有争议的做法。虽然警方以前使用公共家谱数据库来实现这一目的,但我们的文章描述了他们现在如何秘密地从新生儿筛查项目和医学测试中获取基因信息。这引起了道德和法律方面的担忧,模糊了医疗保健和执法之间的界限。反过来,由于对警察的不信任和对隐私的担忧,这可能会使人们不愿寻求重要的医疗服务。为了探索公众对这一问题的态度,作者进行了一项研究,调查外行人如何看待将临床基因数据用于不同类型犯罪的法医鉴定。我们的研究结果表明,人们采取功利主义的观点,他们更有可能支持对严重和正在进行的犯罪进行无证搜查,但更有可能反对对盗窃等更轻微的犯罪进行搜查。然而,不管公众支持与否,这种鲜为人知的做法破坏了人们对医疗机构的信任,侵犯了患者的隐私。我们建议进行三项法律改革,以限制执法部门获取临床和公共卫生基因数据库,并要求对法医用途进行明确同意。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Forensic genetics in the shadows.

This article examines the controversial practice of law enforcement agencies searching genetic samples obtained in health care settings, without a warrant or consent. While police have previously used public genealogy databases for this purpose, our article describes how they are now secretly accessing genetic information from newborn screening programs and medical tests. This raises ethical and legal concerns, blurring the line between health care and law enforcement. This, in turn, may discourage people from seeking important medical care due to distrust in the police and privacy concerns. To explore public attitudes on this issue, the authors conducted a study examining how lay people view the forensic use of clinical genetic data for different types of crimes. Our findings suggest that people take a utilitarian perspective, where they are more likely to support warrantless searches for serious and ongoing crimes but more likely to oppose these searches for more minor offenses like theft. However, regardless of public support, the little-known practice undermines trust in health care institutions and violates patient privacy. We recommend three legal reforms to restrict law enforcement access to clinical and public health genetic databases and to require explicit consent to forensic uses.

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来源期刊
Journal of Law and the Biosciences
Journal of Law and the Biosciences Medicine-Medicine (miscellaneous)
CiteScore
7.40
自引率
5.90%
发文量
35
审稿时长
13 weeks
期刊介绍: The Journal of Law and the Biosciences (JLB) is the first fully Open Access peer-reviewed legal journal focused on the advances at the intersection of law and the biosciences. A co-venture between Duke University, Harvard University Law School, and Stanford University, and published by Oxford University Press, this open access, online, and interdisciplinary academic journal publishes cutting-edge scholarship in this important new field. The Journal contains original and response articles, essays, and commentaries on a wide range of topics, including bioethics, neuroethics, genetics, reproductive technologies, stem cells, enhancement, patent law, and food and drug regulation. JLB is published as one volume with three issues per year with new articles posted online on an ongoing basis.
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