关于儿科姑息关怀团队为兄弟姐妹提供的丧亲关怀的全国性调查。

IF 2.7 Q2 HEALTH CARE SCIENCES & SERVICES
Palliative Care and Social Practice Pub Date : 2024-12-16 eCollection Date: 2024-01-01 DOI:10.1177/26323524241304782
Ashley Ridley, Régis Aubry, Sandra Frache
{"title":"关于儿科姑息关怀团队为兄弟姐妹提供的丧亲关怀的全国性调查。","authors":"Ashley Ridley, Régis Aubry, Sandra Frache","doi":"10.1177/26323524241304782","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Bereavement support is considered a core standard of care for paediatric palliative care (PPC) teams. Support for grieving siblings can present unique challenges. Developmentally appropriate care can help children navigate their grief experience.</p><p><strong>Objectives: </strong>To describe the provider perspectives (mission and development) of bereavement care for siblings, and to describe the bereavement follow-up interventions offered for siblings by hospital-based PPC teams nationwide.</p><p><strong>Design and methods: </strong>Qualitative study conducted by semidirected telephone interviews. At least one member from each PPC team was interviewed. Interviews transcribed verbatim were analysed using grounded theory.</p><p><strong>Results: </strong>Twenty-one teams participated (response rate 91%). Most teams (80%) provided individual psychotherapy to families, and a few (28%) offered group interventions. PPC teams endeavour to expand their bereavement services and create a stronger collaboration network with community services. However, limited human resources, lack of facilities and financing, and geographical distances were frequent obstacles to bereavement care program development.</p><p><strong>Conclusion: </strong>PPC teams support bereaved siblings as an integral part of palliative care. Although PPC teams cannot meet all the needs of bereaved families, they can serve as important reference points to consolidate knowledge of available local resources and offer well-informed guidance to families and community users. Greater public awareness of childhood bereavement and engaging with community structures could help overcome some of the common obstacles to service development. Further studies are warranted in evaluating bereavement services in France and in other healthcare systems.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241304782"},"PeriodicalIF":2.7000,"publicationDate":"2024-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11650496/pdf/","citationCount":"0","resultStr":"{\"title\":\"A nationwide survey of bereavement care for siblings provided by paediatric palliative care teams.\",\"authors\":\"Ashley Ridley, Régis Aubry, Sandra Frache\",\"doi\":\"10.1177/26323524241304782\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Bereavement support is considered a core standard of care for paediatric palliative care (PPC) teams. Support for grieving siblings can present unique challenges. Developmentally appropriate care can help children navigate their grief experience.</p><p><strong>Objectives: </strong>To describe the provider perspectives (mission and development) of bereavement care for siblings, and to describe the bereavement follow-up interventions offered for siblings by hospital-based PPC teams nationwide.</p><p><strong>Design and methods: </strong>Qualitative study conducted by semidirected telephone interviews. At least one member from each PPC team was interviewed. Interviews transcribed verbatim were analysed using grounded theory.</p><p><strong>Results: </strong>Twenty-one teams participated (response rate 91%). Most teams (80%) provided individual psychotherapy to families, and a few (28%) offered group interventions. PPC teams endeavour to expand their bereavement services and create a stronger collaboration network with community services. However, limited human resources, lack of facilities and financing, and geographical distances were frequent obstacles to bereavement care program development.</p><p><strong>Conclusion: </strong>PPC teams support bereaved siblings as an integral part of palliative care. Although PPC teams cannot meet all the needs of bereaved families, they can serve as important reference points to consolidate knowledge of available local resources and offer well-informed guidance to families and community users. Greater public awareness of childhood bereavement and engaging with community structures could help overcome some of the common obstacles to service development. Further studies are warranted in evaluating bereavement services in France and in other healthcare systems.</p>\",\"PeriodicalId\":36693,\"journal\":{\"name\":\"Palliative Care and Social Practice\",\"volume\":\"18 \",\"pages\":\"26323524241304782\"},\"PeriodicalIF\":2.7000,\"publicationDate\":\"2024-12-16\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11650496/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Palliative Care and Social Practice\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/26323524241304782\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"Q2\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Palliative Care and Social Practice","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/26323524241304782","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0

摘要

背景:丧亲支持被认为是儿科姑息治疗(PPC)团队护理的核心标准。支持悲伤的兄弟姐妹会带来独特的挑战。发展相适应的护理可以帮助孩子们度过他们的悲伤经历。目的:描述提供者对兄弟姐妹丧亲关怀的观点(使命和发展),并描述全国医院PPC团队为兄弟姐妹提供的丧亲随访干预措施。设计与方法:采用半定向电话访谈法进行定性研究。每个PPC团队至少有一名成员接受了采访。访谈的逐字记录使用扎根理论进行分析。结果:21个小组参与,有效率91%。大多数小组(80%)向家庭提供个人心理治疗,少数小组(28%)提供团体干预。PPC团队努力扩大丧亲服务,并与社区服务建立更紧密的合作网络。然而,有限的人力资源,缺乏设施和资金,以及地理距离是丧亲护理计划发展的常见障碍。结论:PPC团队支持失去亲人的兄弟姐妹作为姑息治疗的组成部分。虽然PPC小组不能满足 丧失亲人家庭的所有需求,但他们可以作为重要的参考点,巩固对现有当地资源的了解,并为家庭和社区用户提供知情的指导。提高公众对童年丧亲之痛的认识和参与社区结构有助于克服服务发展的一些共同障碍。在评估法国和其他医疗保健系统的丧亲服务方面有必要进行进一步的研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A nationwide survey of bereavement care for siblings provided by paediatric palliative care teams.

Background: Bereavement support is considered a core standard of care for paediatric palliative care (PPC) teams. Support for grieving siblings can present unique challenges. Developmentally appropriate care can help children navigate their grief experience.

Objectives: To describe the provider perspectives (mission and development) of bereavement care for siblings, and to describe the bereavement follow-up interventions offered for siblings by hospital-based PPC teams nationwide.

Design and methods: Qualitative study conducted by semidirected telephone interviews. At least one member from each PPC team was interviewed. Interviews transcribed verbatim were analysed using grounded theory.

Results: Twenty-one teams participated (response rate 91%). Most teams (80%) provided individual psychotherapy to families, and a few (28%) offered group interventions. PPC teams endeavour to expand their bereavement services and create a stronger collaboration network with community services. However, limited human resources, lack of facilities and financing, and geographical distances were frequent obstacles to bereavement care program development.

Conclusion: PPC teams support bereaved siblings as an integral part of palliative care. Although PPC teams cannot meet all the needs of bereaved families, they can serve as important reference points to consolidate knowledge of available local resources and offer well-informed guidance to families and community users. Greater public awareness of childhood bereavement and engaging with community structures could help overcome some of the common obstacles to service development. Further studies are warranted in evaluating bereavement services in France and in other healthcare systems.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Palliative Care and Social Practice
Palliative Care and Social Practice Nursing-Advanced and Specialized Nursing
CiteScore
2.90
自引率
0.00%
发文量
37
审稿时长
9 weeks
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信