儿童肝移植协同学习卫生系统数据集市的开发。

IF 4.7 2区 医学 Q1 GASTROENTEROLOGY & HEPATOLOGY
Liver Transplantation Pub Date : 2025-07-01 Epub Date: 2024-12-10 DOI:10.1097/LVT.0000000000000552
James E Squires, Emily R Perito, Alexander Garza, Read Urban, Kyle A Soltys, Eric Pahl, Cassandra Krise-Confair, George V Mazariegos
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引用次数: 0

摘要

儿童肝移植是一项挽救生命的干预措施,适用于患有从单基因缺陷到全身性肝功能障碍以及进行性肝硬化和门静脉高压症并发症的儿童。Starzl儿童移植卓越网络(SNEPT)是一个致力于儿童肝移植的新型学习健康系统(LHS),此前已确定实践差异、等候名单死亡率、围手术期并发症和质量倡议实施不足是值得优先考虑的关键障碍。方法:该项目是SNEPT和联合器官共享网络(UNOS)之间的一种新型合作伙伴关系,共同设计儿科移植特异性数据集市和门户网站,以系统地绘制了解这些障碍的方法并提供对抗这些障碍的策略。结果:我们将来自中心标准移植分析与研究(STAR)文件的特定移植数据与SNEPT确定的特定项目指标相结合,开发了一个基于网络的应用程序,以显示进展并传播结果。定制的动态可视化构建用于显示项目数据,用于中心级审查和网络范围的基准测试、质量保证和性能改进。讨论:我们的DataMart平台代表了一种成功的、可扩展的、系统级的数据管理方法,可以被其他移植社区采用,以确保移植特定的LHS开发、增长和扩展。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Development of a collaborative learning health system data mart in pediatric liver transplantation.

Pediatric liver transplant is a lifesaving intervention for children with disparate pathology ranging from single-gene defects to global liver dysfunction and complications from progressive cirrhosis and portal hypertension. The Starzl Network for Excellence in Pediatric Transplantation (SNEPT), a novel learning health system dedicated to pediatric liver transplant, has previously identified practice variability, waitlist mortality, perioperative complications, and inadequate quality initiative implementation as critical barriers that deserve prioritization in the field. This project was a novel partnership between SNEPT and the United Network for Organ Sharing to co-design a pediatric transplant-specific data mart and web portal to systematically map an approach to understanding these barriers and deliver strategies to combat them. We combined transplant-specific data from center Standard Transplant Analysis and Research files with project specific metrics identified by SNEPT to develop a web-based application to display progress and disseminate results. Customized, dynamic visualizations were built to display project data for center-level review and network-wide benchmarking, quality assurance, and performance improvement. Our DataMart platform represents a successful, scalable, systems-level approach to data management that can be adopted by other transplant communities to ensure transplant-specific learning health system development, growth, and expansion.

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来源期刊
Liver Transplantation
Liver Transplantation 医学-外科
CiteScore
7.40
自引率
6.50%
发文量
254
审稿时长
3-8 weeks
期刊介绍: Since the first application of liver transplantation in a clinical situation was reported more than twenty years ago, there has been a great deal of growth in this field and more is anticipated. As an official publication of the AASLD, Liver Transplantation delivers current, peer-reviewed articles on liver transplantation, liver surgery, and chronic liver disease — the information necessary to keep abreast of this evolving specialty.
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