协调全球卫生研究中的数据可操作性和问责性:以SARS-CoV-2为例。

IF 2.1 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Global Public Health Pub Date : 2025-12-01 Epub Date: 2024-12-11 DOI:10.1080/17441692.2024.2436422
Nathanael Sheehan, Sabina Leonelli
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引用次数: 0

摘要

在数据基础设施中,可操作性和问责性的需求通常被认为是不兼容的,这就形成了一种权衡,增强一个会削弱另一个。通过对用于共享SARS-CoV-2病毒基因组数据的两种数据基础设施的比较分析,我们认为,要使数据可用于知识开发,就需要承诺确保相关数据代表正在研究的现象,并对数据主体和用户负责。这反过来又以以下条件为前提:(1)广泛而多样的相关来源提供了足够的数据;(2)建立反馈和包容机制,以确保数据贡献者能够参与数据治理和解释,从而有助于充分地将数据语境化;(3)问责制扩展到数据基础设施运行、融资和定位的方式,以服务于-à-vis他们打算服务的社区。这种数据共享模式只有在数据不需要容易获取的情况下才能发挥作用;相反,可操作性取决于数据基础设施的响应能力和问责制,以及为确保贡献者之间的公开沟通而投入的努力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Reconciling data actionability and accountability in global health research: The case of SARS-CoV-2.

The requirements for actionability and accountability in data infrastructures are often viewed as incompatible, creating a trade-off where enhancing one diminishes the other. Through a comparative analysis of two data infrastructures used to share genomic data about the SARS-CoV-2 virus, we argue that making data actionable for knowledge development involves a commitment to ensuring that the data in question are representative of the phenomena being studied and accountable to data subjects and users. This in turn presupposes that: (1) enough data are contributed by a wide and diverse set of relevant sources; (2) mechanisms of feedback and inclusion are set up to ensure that data contributors can participate in data governance and interpretation, thereby helping to adequately contextualise data; and (3) accountability extends to the ways in which data infrastructures are run, financed and positioned vis-à-vis the communities they are meant to serve. Such a model of data sharing can only work on the understanding that data do not need to be easily accessible to be actionable; rather, actionability depends on the responsiveness and accountability of data infrastructures, and the efforts invested in ensuring open communication among contributors.

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来源期刊
Global Public Health
Global Public Health PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
6.50
自引率
3.00%
发文量
120
期刊介绍: Global Public Health is an essential peer-reviewed journal that energetically engages with key public health issues that have come to the fore in the global environment — mounting inequalities between rich and poor; the globalization of trade; new patterns of travel and migration; epidemics of newly-emerging and re-emerging infectious diseases; the HIV/AIDS pandemic; the increase in chronic illnesses; escalating pressure on public health infrastructures around the world; and the growing range and scale of conflict situations, terrorist threats, environmental pressures, natural and human-made disasters.
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