苏格兰肝病可及性研究伙伴关系(SHARP)改善整个苏格兰获得肝脏服务的机会。

NIHR open research Pub Date : 2024-11-27 eCollection Date: 2024-01-01 DOI:10.3310/nihropenres.13650.2
Ruairi Lynch, Jonathan Fallowfield, David Blane, Rachael Swann, Kirsty Mills, Amy Cordwell, Ewan Forrest
{"title":"苏格兰肝病可及性研究伙伴关系(SHARP)改善整个苏格兰获得肝脏服务的机会。","authors":"Ruairi Lynch, Jonathan Fallowfield, David Blane, Rachael Swann, Kirsty Mills, Amy Cordwell, Ewan Forrest","doi":"10.3310/nihropenres.13650.2","DOIUrl":null,"url":null,"abstract":"<p><strong>Background and aims: </strong>Scotland has the highest rate of deaths from chronic liver disease (CLD) in the UK. Socioeconomic and geographic isolation represent significant challenges to delivery of care. The multidisciplinary Scottish Hepatology Access Research Partnership (SHARP) aimed to identify and break down barriers to diagnosing and treating liver disease in Scotland.</p><p><strong>Methods: </strong>SHARP comprised a core Partnership Management Group that developed projects and a Partnership Advisory Group which provided oversight.</p><p><strong>Results: </strong>SHARP established workstreams to achieve its aims: Understanding current access to liver services To identify barriers to liver patient care in Scotland we audited liver services and surveyed the experience of patients (n=276); primary care physicians (n=199) and Gastroenterologists/Hepatologists (n=99). Technologies to monitor and diagnose CLD Liver disease is diagnosed and monitored using routine blood testing which disadvantages isolated patients. We plan to develop a point of use test to analyse ALT and AST to enable community-based identification and monitoring of liver disease. Identification of patients at risk of liver disease CLD is often diagnosed late. We propose developing an artificial intelligence tool to predict an individual's risk of an emergent admission to hospital due to CLD. This tool will be validated in a Welsh cohort. Barriers to engagement with care for liver disease Hepatology did-not-attend rates are the highest of any specialty. We propose research to co-design a suite of recommendations to improve engagement with care for CLD patients. We aim to achieve this by interviewing practitioners alongside patients who do and don't engage with services.</p><p><strong>Conclusions: </strong>Through a national survey SHARP has developed an understanding of the issues affecting access to hepatology services in Scotland. SHARP has developed projects that will help address the issues that socioeconomically and geographically isolated patients face when it comes to identifying and treating liver disease.</p>","PeriodicalId":74312,"journal":{"name":"NIHR open research","volume":"4 ","pages":"58"},"PeriodicalIF":0.0000,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11628933/pdf/","citationCount":"0","resultStr":"{\"title\":\"The Scottish Hepatology Access Research Partnership (SHARP) improving access to liver services throughout Scotland.\",\"authors\":\"Ruairi Lynch, Jonathan Fallowfield, David Blane, Rachael Swann, Kirsty Mills, Amy Cordwell, Ewan Forrest\",\"doi\":\"10.3310/nihropenres.13650.2\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background and aims: </strong>Scotland has the highest rate of deaths from chronic liver disease (CLD) in the UK. Socioeconomic and geographic isolation represent significant challenges to delivery of care. The multidisciplinary Scottish Hepatology Access Research Partnership (SHARP) aimed to identify and break down barriers to diagnosing and treating liver disease in Scotland.</p><p><strong>Methods: </strong>SHARP comprised a core Partnership Management Group that developed projects and a Partnership Advisory Group which provided oversight.</p><p><strong>Results: </strong>SHARP established workstreams to achieve its aims: Understanding current access to liver services To identify barriers to liver patient care in Scotland we audited liver services and surveyed the experience of patients (n=276); primary care physicians (n=199) and Gastroenterologists/Hepatologists (n=99). Technologies to monitor and diagnose CLD Liver disease is diagnosed and monitored using routine blood testing which disadvantages isolated patients. We plan to develop a point of use test to analyse ALT and AST to enable community-based identification and monitoring of liver disease. Identification of patients at risk of liver disease CLD is often diagnosed late. We propose developing an artificial intelligence tool to predict an individual's risk of an emergent admission to hospital due to CLD. This tool will be validated in a Welsh cohort. Barriers to engagement with care for liver disease Hepatology did-not-attend rates are the highest of any specialty. We propose research to co-design a suite of recommendations to improve engagement with care for CLD patients. We aim to achieve this by interviewing practitioners alongside patients who do and don't engage with services.</p><p><strong>Conclusions: </strong>Through a national survey SHARP has developed an understanding of the issues affecting access to hepatology services in Scotland. SHARP has developed projects that will help address the issues that socioeconomically and geographically isolated patients face when it comes to identifying and treating liver disease.</p>\",\"PeriodicalId\":74312,\"journal\":{\"name\":\"NIHR open research\",\"volume\":\"4 \",\"pages\":\"58\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2024-11-27\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11628933/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"NIHR open research\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.3310/nihropenres.13650.2\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"NIHR open research","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.3310/nihropenres.13650.2","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/1 0:00:00","PubModel":"eCollection","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

背景和目的:苏格兰是英国慢性肝病(CLD)死亡率最高的地区。社会经济和地理隔离对提供护理构成重大挑战。多学科的苏格兰肝病可及性研究伙伴关系(SHARP)旨在确定并打破苏格兰肝病诊断和治疗的障碍。方法:SHARP由一个核心伙伴关系管理小组和一个提供监督的伙伴关系咨询小组组成。结果:SHARP建立了工作流程以实现其目标:了解目前肝脏服务的可及性为了确定苏格兰肝脏患者护理的障碍,我们审计了肝脏服务并调查了患者的经历(n=276);初级保健医生(n=199)和胃肠病学/肝病学家(n=99)。CLD的监测和诊断技术肝病的诊断和监测采用常规血液检测,这不利于孤立的患者。我们计划开发一种使用点测试来分析ALT和AST,以实现基于社区的肝病识别和监测。肝病CLD危险患者的识别往往诊断较晚。我们建议开发一种人工智能工具来预测个人因CLD而紧急入院的风险。该工具将在威尔士队列中进行验证。参与肝病护理的障碍肝病未出席率是所有专业中最高的。我们建议研究共同设计一套建议,以提高CLD患者的护理参与度。我们的目标是通过采访从业人员以及参与和不参与服务的患者来实现这一目标。结论:通过一项全国性调查,SHARP对影响苏格兰肝病服务获取的问题有了了解。SHARP已经开发了一些项目,这些项目将有助于解决社会经济和地理上孤立的患者在识别和治疗肝病时面临的问题。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Scottish Hepatology Access Research Partnership (SHARP) improving access to liver services throughout Scotland.

Background and aims: Scotland has the highest rate of deaths from chronic liver disease (CLD) in the UK. Socioeconomic and geographic isolation represent significant challenges to delivery of care. The multidisciplinary Scottish Hepatology Access Research Partnership (SHARP) aimed to identify and break down barriers to diagnosing and treating liver disease in Scotland.

Methods: SHARP comprised a core Partnership Management Group that developed projects and a Partnership Advisory Group which provided oversight.

Results: SHARP established workstreams to achieve its aims: Understanding current access to liver services To identify barriers to liver patient care in Scotland we audited liver services and surveyed the experience of patients (n=276); primary care physicians (n=199) and Gastroenterologists/Hepatologists (n=99). Technologies to monitor and diagnose CLD Liver disease is diagnosed and monitored using routine blood testing which disadvantages isolated patients. We plan to develop a point of use test to analyse ALT and AST to enable community-based identification and monitoring of liver disease. Identification of patients at risk of liver disease CLD is often diagnosed late. We propose developing an artificial intelligence tool to predict an individual's risk of an emergent admission to hospital due to CLD. This tool will be validated in a Welsh cohort. Barriers to engagement with care for liver disease Hepatology did-not-attend rates are the highest of any specialty. We propose research to co-design a suite of recommendations to improve engagement with care for CLD patients. We aim to achieve this by interviewing practitioners alongside patients who do and don't engage with services.

Conclusions: Through a national survey SHARP has developed an understanding of the issues affecting access to hepatology services in Scotland. SHARP has developed projects that will help address the issues that socioeconomically and geographically isolated patients face when it comes to identifying and treating liver disease.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信