神经重症监护病房中基于网络和移动的共享决策工具的开发。

IF 5.6 2区 医学 Q1 CLINICAL NEUROLOGY
Winnie L Liu, Lidan Zhang, Soussan Djamasbi, Bengisu Tulu, Susanne Muehlschlegel
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引用次数: 0

摘要

在神经重症监护室(neuroICU),严重急性脑损伤(SABI)患者无法做出自己的医疗保健决定。作出生死决定的责任,例如护理目标,由代理决策者承担,通常是家庭。除了决策负担之外,由于预测的不确定性、决策的时间压力以及难以理解和解释患者的价值观和偏好,家庭的情感负担进一步加重,最终导致潜在的临床医生与家庭沟通破裂。尽管存在这些挑战,但目前还没有指导如何最好地处理这些困难的决定。共同决策(SDM)已成为改善临床医生与家庭沟通的推荐方法,通过提供信息交换、审议和治疗决策的结构化框架,使代理人在决策中发挥积极作用。决策辅助(DAs)通过提供平衡、可获取、无偏见的信息,帮助代理人根据患者的价值观做出决定,从而促进SDM。这篇综述强调了数字数据相对于纸质数据分析的潜在优势,包括改进的可访问性、交互性和个性化,以及整合新兴技术以提高数据分析的有效性。此外,我们回顾了目前为神经icu设置开发的数字DAs。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Development of web- and mobile-based shared decision-making tools in the neurological intensive care unit.

In the neurological intensive care unit (neuroICU), patients with severe acute brain injury (SABI) are rendered unable to make their own healthcare decisions. The responsibility of making life-or-death decisions, such as goals of care, is carried by surrogate decision-makers, usually families. In addition to the burden of decision-making, the emotional burden on families is further compounded by prognostication uncertainty, time-pressure for decision-making, and difficulties in understanding and interpreting the patient's values and preferences, ultimately resulting in potential clinician-family communication breakdown. Despite these challenges, there is currently no guidance on how to best approach these difficult decisions. Shared decision-making (SDM) has emerged as the recommended approach to improve clinician-family communication, empowering surrogates to take an active role in decision-making by providing a structured framework for information exchange, deliberation, and treatment decisions. Decision aids (DAs) facilitate SDM by offering balanced, accessible, unbiased information and helping surrogates decide according to patients' values. This review highlights the potential advantage of digital over paper-based DAs, including improved accessibility, interactivity, and personalization, and the integration of emerging technologies to enhance DA effectiveness. Additionally, we review the current digital DAs developed for the neuroICU setting.

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来源期刊
Neurotherapeutics
Neurotherapeutics 医学-神经科学
CiteScore
11.00
自引率
3.50%
发文量
154
审稿时长
6-12 weeks
期刊介绍: Neurotherapeutics® is the journal of the American Society for Experimental Neurotherapeutics (ASENT). Each issue provides critical reviews of an important topic relating to the treatment of neurological disorders written by international authorities. The Journal also publishes original research articles in translational neuroscience including descriptions of cutting edge therapies that cross disciplinary lines and represent important contributions to neurotherapeutics for medical practitioners and other researchers in the field. Neurotherapeutics ® delivers a multidisciplinary perspective on the frontiers of translational neuroscience, provides perspectives on current research and practice, and covers social and ethical as well as scientific issues.
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