多发性硬化症患者的工作障碍:挪威文化适应和多发性硬化症工作困难问卷的简短版本的验证。

IF 1.3 Q3 REHABILITATION
Frontiers in rehabilitation sciences Pub Date : 2024-11-20 eCollection Date: 2024-01-01 DOI:10.3389/fresc.2024.1404723
Britt Normann, Ellen Christin Arntzen, Cynthia A Honan
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引用次数: 0

摘要

背景和目的:多发性硬化症(MS)与高失业率有关,在对这些人的定期随访中,确定工作障碍是至关重要的。目前的研究旨在文化适应和评估挪威版多发性硬化症工作困难问卷-23 (MSWDQ-23)的心理测量特性。方法:对229例多发性硬化症(MS)患者进行挪威语版MSWDQ-23 (MSWDQ-23NV)的前后翻译。通过验证性因素分析和将得分与就业状况、残疾和与健康相关的生活质量结果测量相关联来评估有效性。通过将MSWDQ-23评分与其他研究措施相关联来检验收敛效度。内部一致性由Cronbach's alpha检验。结果:验证性因子分析显示,MSWDQ-23NV的数据具有良好的拟合性,完整量表及其子量表(物理障碍、心理/认知障碍、外部障碍)也具有良好的内部一致性。MSWDQ-23NV分量表与健康相关生活质量结果测量的预期方向相关。虽然物理障碍分量表得分较高与残疾程度和进展性多发性硬化症类型密切相关,但所有分量表得分较高与过去一年没有工作有关。讨论:挪威语MSWDQ-23是一种内部一致和有效的工具,用于测量挪威语人口中所有类型MS患者的感知工作困难。MSWDQ-23NV可被视为卫生保健专业人员评估多发性硬硬症患者自我报告的工作困难的有用工具。挪威MSWDQ-23量表应检查测试-再测试的可靠性,并考虑在挪威多发性硬硬症门诊诊所的定期随访中实施,以支持维持就业。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Barriers for work in people with multiple sclerosis: a Norwegian cultural adaptation and validation of the short version of the multiple sclerosis work difficulties questionnaire.

Background and purpose: Multiple sclerosis (MS) is associated with high rates of unemployment, and barriers for work are essential to identify in the regular follow-up of these people. The current study aimed to culturally adapt and evaluate the psychometric properties of the Norwegian version of the Multiple Sclerosis Work Difficulties Questionnaire-23 (MSWDQ-23).

Methods: Following backward and forward translation, the Norwegian version of the MSWDQ-23 (MSWDQ-23NV) was completed by 229 people with multiple sclerosis (MS). Validity was evaluated through confirmatory factor analysis and by associating scores with employment status, disability, and health-related quality of life outcome measures. Convergent validity was checked by correlating MSWDQ-23 scores with alternative study measures. Internal consistencies were examined by Cronbach's alfa.

Results: A good fit for the data was demonstrated for the MSWDQ-23NV in confirmatory factor analysis, with excellent internal consistencies also demonstrated for the full scale and its subscales (physical barriers, psychological/cognitive barriers, external barriers). The MSWDQ-23NV subscales were related in the expected direction to health-related quality of life outcome measures. While higher scores on the physical barriers subscale was strongly associated with higher levels of disability and progressive MS types, higher scores on all subscales were associated with not working in the past year.

Discussion: The Norwegian MSWDQ-23 is an internally consistent and valid instrument to measure perceived work difficulties in persons with all types of MS in a Norwegian-speaking population. The MSWDQ-23NV can be considered a useful tool for health care professionals to assess self-reported work difficulties in persons with MS. The Norwegian MSWDQ-23 scale should be examined for test-retest reliability and considered implemented in the regular follow up at the MS-outpatient clinics in Norway to support employment maintenance.

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