自闭症护理中的编排节奏:在时间中并通过时间来实现父母的专业知识。

IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES
Dana Zarhin, Naama Asher
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引用次数: 0

摘要

本文通过分析对使用补充和替代医学(CAM)治疗自闭症儿童的父母的半结构化访谈,深入探讨了外行专业知识与暂时性之间的关系。分析表明,时间和时间性在父母如何构建和实施他们的专业知识方面发挥着重要作用。面对不确定性、紧迫性,以及医疗和教育系统的支持不足,父母在管理孩子的治疗方面承担了至关重要的责任。随着时间的推移,他们获得了知识和技能,最终声称自己在照顾孩子、做出治疗决定和实施治疗方面具有专业知识。父母从事复杂的时间工作,因为他们试图协调日常、发展、治疗和社会节奏,在未来和现在之间交替关注。他们试图通过使用CAM疗法来使孩子的节律与同龄人同步,而传统医学尚未采用这种疗法,因为他们认为这种疗法既慢又过时。本研究为自闭症护理、护理的暂时性以及外行专业知识与暂时性之间的关系提供了新的见解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Orchestrating rhythms in autism care: enacting parental expertise in and through time.

This article delves into the underexplored relationship between lay expertise and temporality by analysing semi-structured interviews with parents who treat their autistic children using complementary and alternative medicine (CAM). The analysis indicates that time and temporalities play a significant role in how parents construct and enact their expertise. Faced with uncertainty, urgency, and inadequate support from medical and educational systems, parents assumed crucial responsibilities in managing their children's therapies. Over time, they acquired knowledge and skills, ultimately claiming expertise in caring for their children, making therapy decisions and administering treatments. Parents engaged in complex time work as they attempted to orchestrate everyday, developmental, therapeutic, and social rhythms, alternating their focus between future and present. They endeavoured to synchronise their children's rhythms with those of peers by using CAM therapies not yet adopted into conventional medicine, which they perceived as slow and outdated. This study contributes novel insights into autism care, temporalities of care, and the under-examined nexus between lay expertise and temporality.

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来源期刊
CiteScore
7.50
自引率
0.00%
发文量
14
期刊介绍: An international, scholarly peer-reviewed journal, Health Sociology Review explores the contribution of sociology and sociological research methods to understanding health and illness; to health policy, promotion and practice; and to equity, social justice, social policy and social work. Health Sociology Review is published in association with The Australian Sociological Association (TASA) under the editorship of Eileen Willis. Health Sociology Review publishes original theoretical and research articles, literature reviews, special issues, symposia, commentaries and book reviews.
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