在少数族裔占多数的癌症中心实施实时电子患者报告结果和数字分析的看法。

IF 3.3 Q2 ONCOLOGY
JCO Clinical Cancer Informatics Pub Date : 2024-11-01 Epub Date: 2024-11-21 DOI:10.1200/CCI-24-00188
Daniela Arcos, Mary Dagsi, Reem Nasr, Carolyn Nguyen, Ding Quan Ng, Alexandre Chan
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引用次数: 0

摘要

目的:电子患者报告结果(ePRO)工具越来越多地用于提供有关患者症状和生活质量的第一手信息。本研究探讨了患者和医疗服务提供者(HCPs)如何看待数字实时 ePRO 工具的使用,以及位于少数民族占多数的县的癌症中心的数字分析。此外,我们还从参与者的角度描述了实施障碍和促进因素:我们进行了一项定性子研究,作为加州大学欧文分校赵氏综合癌症中心更大规模实施研究的一部分。患者和 HCP 完成了半结构化访谈和焦点小组讨论。研究采用主题分析法确定了有关干预措施对患者护理的影响和实施因素的关键主题:共有 31 名参与者接受了访谈,其中包括 15 名患者(67% 说英语,33% 说西班牙语)和 16 名 HCP(43.8% 为药剂师,37.5% 为医生,18.8% 为护士)。他们认为,使用实时 ePRO 对患者护理、改善患者与医护人员的沟通以及提高症状意识都有好处。实施的促进因素包括在输液中心内易于理解和完成。障碍包括需要将结果纳入电子病历,并创建实时转诊途径以满足患者需求:结论:在少数族裔占多数的人群中使用实时 ePRO 被认为能加强以患者为中心的肿瘤护理,但要在临床环境中成功整合,必须解决实施障碍。本研究的结果可为减少健康差异的实施策略提供参考。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perceptions of Implementing Real-Time Electronic Patient-Reported Outcomes and Digital Analytics in a Majority-Minority Cancer Center.

Purpose: Electronic patient-reported outcome (ePRO) tools are increasingly used to provide first-hand information on patient's symptoms and quality of life. This study explored how patients and health care providers (HCPs) perceive the use of a digital real-time ePRO tool, coupled with digital analytics at a cancer center located in a majority-minority county. Furthermore, we described the implementation barriers and facilitators identified from the participants' perspectives.

Methods: We conducted a qualitative substudy as part of a larger implementation study conducted at University of California Irvine Chao Family Comprehensive Cancer Center. Patients and HCPs completed semistructured interviews and a focus group discussion. Thematic analysis was used to identify key themes regarding perceived impact of the intervention on patient's care and implementation factors.

Results: A total of 31 participants, comprising 15 patients (67% English-speaking, 33% Spanish-speaking) and 16 HCPs (43.8% pharmacists, 37.5% physicians, 18.8% nurses), were interviewed. The utilization of real-time ePRO was perceived to beneficially affect patient care, improve patient-provider communication, and increase symptom awareness. Implementation facilitators included ease of comprehension and completion within the infusion center. Barriers included the need to incorporate results in electronic medical records and create real-time referral pathways to address patient's needs.

Conclusion: The use of real-time ePRO in a majority-minority population was perceived to enhance patient-centered oncology care, yet implementation barriers must be addressed for successful integration in clinical settings. The findings from this study may inform implementation strategies to reduce health disparities.

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来源期刊
CiteScore
6.20
自引率
4.80%
发文量
190
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