Tessa Kolar MSc, Courtney B. Cook MSc, CGC, Anthony Cooper MBChB, FRCSC, Tom Blydt-Hansen MDCM, FRCPC, Mary B. Connolly FRCP, MBBCH, Cyrus Boelman MD, Harpreet Chhina PhD, Anita Datta MD, Michelle Demos MD, FRCPC, Kyla J. Hildebrand MD, FRCPC, Kathryn Selby MBBCH, FRCPC, Ye Shen MPH, Scott E. Wenderfer MD, PhD, GenCOUNSEL Study, Alison M. Elliott PhD, CGC
{"title":"评估不列颠哥伦比亚省儿童医院以家庭为中心的护理：医疗服务提供者的观点","authors":"Tessa Kolar MSc, Courtney B. Cook MSc, CGC, Anthony Cooper MBChB, FRCSC, Tom Blydt-Hansen MDCM, FRCPC, Mary B. Connolly FRCP, MBBCH, Cyrus Boelman MD, Harpreet Chhina PhD, Anita Datta MD, Michelle Demos MD, FRCPC, Kyla J. Hildebrand MD, FRCPC, Kathryn Selby MBBCH, FRCPC, Ye Shen MPH, Scott E. Wenderfer MD, PhD, GenCOUNSEL Study, Alison M. Elliott PhD, CGC","doi":"10.1111/jep.14187","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>Family-centred care (FCC) emphasizes a partnership approach to care between healthcare providers (HCPs), patients, and families. FCC provides significant benefits to both children and families; however, challenges exist in implementing FCC into practice. This study aimed to explore HCPs' FCC behaviours in multidisciplinary specialty clinics at a tertiary pediatric health care center in Canada.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>A demographic survey and the Measure of Processes of Care for Service Providers (MPOC-SP) questionnaire was administered to HCPs in five specialty clinics: orthopaedics, neurology, multi-organ transplant, immunology, and nephrology. Survey data were summarized using descriptive statistics. The association between possible predictor variables (ethnicity, gender, years in clinical practice) and MPOC-SP scores were analysed by analysis of variance (ANOVA) followed by post-hoc Tukey's test. Differences in scores across professional disciplines were analysed by multivariate analysis of variance (MANOVA) followed by ANOVA. Items rated lower (1–4 out of 7 by >33% of participants) were identified as potential areas for improvement.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>HCPs (<i>N</i> = 77) from all five clinics rated the MPOC-SP domain ‘Treating People Respectfully’ the highest (mean 6.00 ± 0.59) and ‘Providing General Information’ the lowest (mean 4.56 ± 1.27). HCPs with 5–10 years of experience had higher scores across all domains compared to HCPs with <5 years and >10 years of experience. There were no significant differences in scores based on ethnicity, gender, and professional discipline. Items rated lower (1–4 out of 7 by >33% of participants) involved providing general information and emotional support to families.</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>Providing general information and emotional support to patients and families are areas for improvement for all specialty clinics surveyed. Given genetic counsellors (GCs) expertise in education and counselling, GC integration in these clinics is one way in which FCC can be improved. Our study also shows that years of work experience influences HCPs' capacity to provide FCC.</p>\n </section>\n </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 1","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.14187","citationCount":"0","resultStr":"{\"title\":\"Evaluating family-centred care at BC Children's Hospital: Healthcare providers' perspectives\",\"authors\":\"Tessa Kolar MSc, Courtney B. Cook MSc, CGC, Anthony Cooper MBChB, FRCSC, Tom Blydt-Hansen MDCM, FRCPC, Mary B. Connolly FRCP, MBBCH, Cyrus Boelman MD, Harpreet Chhina PhD, Anita Datta MD, Michelle Demos MD, FRCPC, Kyla J. 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Survey data were summarized using descriptive statistics. The association between possible predictor variables (ethnicity, gender, years in clinical practice) and MPOC-SP scores were analysed by analysis of variance (ANOVA) followed by post-hoc Tukey's test. Differences in scores across professional disciplines were analysed by multivariate analysis of variance (MANOVA) followed by ANOVA. Items rated lower (1–4 out of 7 by >33% of participants) were identified as potential areas for improvement.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>HCPs (<i>N</i> = 77) from all five clinics rated the MPOC-SP domain ‘Treating People Respectfully’ the highest (mean 6.00 ± 0.59) and ‘Providing General Information’ the lowest (mean 4.56 ± 1.27). HCPs with 5–10 years of experience had higher scores across all domains compared to HCPs with <5 years and >10 years of experience. 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Evaluating family-centred care at BC Children's Hospital: Healthcare providers' perspectives
Background
Family-centred care (FCC) emphasizes a partnership approach to care between healthcare providers (HCPs), patients, and families. FCC provides significant benefits to both children and families; however, challenges exist in implementing FCC into practice. This study aimed to explore HCPs' FCC behaviours in multidisciplinary specialty clinics at a tertiary pediatric health care center in Canada.
Methods
A demographic survey and the Measure of Processes of Care for Service Providers (MPOC-SP) questionnaire was administered to HCPs in five specialty clinics: orthopaedics, neurology, multi-organ transplant, immunology, and nephrology. Survey data were summarized using descriptive statistics. The association between possible predictor variables (ethnicity, gender, years in clinical practice) and MPOC-SP scores were analysed by analysis of variance (ANOVA) followed by post-hoc Tukey's test. Differences in scores across professional disciplines were analysed by multivariate analysis of variance (MANOVA) followed by ANOVA. Items rated lower (1–4 out of 7 by >33% of participants) were identified as potential areas for improvement.
Results
HCPs (N = 77) from all five clinics rated the MPOC-SP domain ‘Treating People Respectfully’ the highest (mean 6.00 ± 0.59) and ‘Providing General Information’ the lowest (mean 4.56 ± 1.27). HCPs with 5–10 years of experience had higher scores across all domains compared to HCPs with <5 years and >10 years of experience. There were no significant differences in scores based on ethnicity, gender, and professional discipline. Items rated lower (1–4 out of 7 by >33% of participants) involved providing general information and emotional support to families.
Conclusions
Providing general information and emotional support to patients and families are areas for improvement for all specialty clinics surveyed. Given genetic counsellors (GCs) expertise in education and counselling, GC integration in these clinics is one way in which FCC can be improved. Our study also shows that years of work experience influences HCPs' capacity to provide FCC.
期刊介绍：
The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
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