Jane Kabami, Cecilia Akatukwasa, Stella Kabageni, Joanita Nangendo, Ambrose Byamukama, Fredrick Atwiine, Valence Mfitumukiza, John Bosco Tamu Munezero, Elizabeth Arinaitwe, Andrew Mutabazi, Peter Ssebutinde, Phillipa Musoke, Moses R Kamya, Anne R Katahoire
{"title":"\"我希望生一个没有艾滋病毒的孩子\"：乌干达西南部孕妇和哺乳期母亲对艾滋病毒护理中病毒载量检测和抑制的看法。","authors":"Jane Kabami, Cecilia Akatukwasa, Stella Kabageni, Joanita Nangendo, Ambrose Byamukama, Fredrick Atwiine, Valence Mfitumukiza, John Bosco Tamu Munezero, Elizabeth Arinaitwe, Andrew Mutabazi, Peter Ssebutinde, Phillipa Musoke, Moses R Kamya, Anne R Katahoire","doi":"10.1007/s44155-024-00120-1","DOIUrl":null,"url":null,"abstract":"<p><strong>Introduction: </strong>Viral suppression is a critical component for preventing mother-to-child transmission of HIV(MTCT). Mothers' perceptions of viral load suppression is crucial in the attainment of successful outcomes in preventing mother to child transmission of HIV. We therefore aimed to explore the experiences and perceptions of women on viral suppression.</p><p><strong>Methods: </strong>This was a qualitative sub-study embedded in a cluster-randomized trial (NCT04122144) designed to improve viral load outcomes among pregnant and breastfeeding mothers living with HIV in four level III/IV health facilities in South-western Uganda. Thirty-two in-depth interviews were conducted with pregnant and breastfeeding women with HIV from 1st March 2020 to 30th September 2020 to explore their understanding and interpretation of viral suppression. Interviews were audio-recorded, transcribed, and coded in Dedoose software for analysis.</p><p><strong>Results: </strong>A total of 32 Women living with HIV were enrolled in this qualitative study. WLHIV explained viral suppression in the context of attaining good health and having HIV-free babies. Adherence to ART was presented as a key avenue to viral suppression. The level of engagement with providers was presented as a key attribute of attaining viral suppression. The participants narrated their experiences with viral load testing within the routine services. However, they revealed experiencing some proximate barriers to suppression including anticipated stigma, challenges with non-disclosure of HIV status, pregnancy distress, and distance to the health facility.</p><p><strong>Conclusion: </strong>The understanding and interpretation of viral suppression among pregnant and breastfeeding mothers living with HIV provides a basis for adopting behaviors leading to prevention of vertical transmission of HIV. Health care workers can support women by providing clear and culturally appropriate education about viral suppression, adherence strategies and creating a supportive and non-judgmental environment.</p>","PeriodicalId":29972,"journal":{"name":"Discover Social Science and Health","volume":"4 1","pages":"60"},"PeriodicalIF":0.0000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11541329/pdf/","citationCount":"0","resultStr":"{\"title\":\"\\\"I desire to have an HIV-free baby\\\": pregnant and breastfeeding mothers' perceptions of Viral load testing and suppression in HIV care in southwestern Uganda.\",\"authors\":\"Jane Kabami, Cecilia Akatukwasa, Stella Kabageni, Joanita Nangendo, Ambrose Byamukama, Fredrick Atwiine, Valence Mfitumukiza, John Bosco Tamu Munezero, Elizabeth Arinaitwe, Andrew Mutabazi, Peter Ssebutinde, Phillipa Musoke, Moses R Kamya, Anne R Katahoire\",\"doi\":\"10.1007/s44155-024-00120-1\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Introduction: </strong>Viral suppression is a critical component for preventing mother-to-child transmission of HIV(MTCT). Mothers' perceptions of viral load suppression is crucial in the attainment of successful outcomes in preventing mother to child transmission of HIV. We therefore aimed to explore the experiences and perceptions of women on viral suppression.</p><p><strong>Methods: </strong>This was a qualitative sub-study embedded in a cluster-randomized trial (NCT04122144) designed to improve viral load outcomes among pregnant and breastfeeding mothers living with HIV in four level III/IV health facilities in South-western Uganda. Thirty-two in-depth interviews were conducted with pregnant and breastfeeding women with HIV from 1st March 2020 to 30th September 2020 to explore their understanding and interpretation of viral suppression. Interviews were audio-recorded, transcribed, and coded in Dedoose software for analysis.</p><p><strong>Results: </strong>A total of 32 Women living with HIV were enrolled in this qualitative study. WLHIV explained viral suppression in the context of attaining good health and having HIV-free babies. Adherence to ART was presented as a key avenue to viral suppression. The level of engagement with providers was presented as a key attribute of attaining viral suppression. The participants narrated their experiences with viral load testing within the routine services. However, they revealed experiencing some proximate barriers to suppression including anticipated stigma, challenges with non-disclosure of HIV status, pregnancy distress, and distance to the health facility.</p><p><strong>Conclusion: </strong>The understanding and interpretation of viral suppression among pregnant and breastfeeding mothers living with HIV provides a basis for adopting behaviors leading to prevention of vertical transmission of HIV. Health care workers can support women by providing clear and culturally appropriate education about viral suppression, adherence strategies and creating a supportive and non-judgmental environment.</p>\",\"PeriodicalId\":29972,\"journal\":{\"name\":\"Discover Social Science and Health\",\"volume\":\"4 1\",\"pages\":\"60\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11541329/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Discover Social Science and Health\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1007/s44155-024-00120-1\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/11/6 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Discover Social Science and Health","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1007/s44155-024-00120-1","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/11/6 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
"I desire to have an HIV-free baby": pregnant and breastfeeding mothers' perceptions of Viral load testing and suppression in HIV care in southwestern Uganda.
Introduction: Viral suppression is a critical component for preventing mother-to-child transmission of HIV(MTCT). Mothers' perceptions of viral load suppression is crucial in the attainment of successful outcomes in preventing mother to child transmission of HIV. We therefore aimed to explore the experiences and perceptions of women on viral suppression.
Methods: This was a qualitative sub-study embedded in a cluster-randomized trial (NCT04122144) designed to improve viral load outcomes among pregnant and breastfeeding mothers living with HIV in four level III/IV health facilities in South-western Uganda. Thirty-two in-depth interviews were conducted with pregnant and breastfeeding women with HIV from 1st March 2020 to 30th September 2020 to explore their understanding and interpretation of viral suppression. Interviews were audio-recorded, transcribed, and coded in Dedoose software for analysis.
Results: A total of 32 Women living with HIV were enrolled in this qualitative study. WLHIV explained viral suppression in the context of attaining good health and having HIV-free babies. Adherence to ART was presented as a key avenue to viral suppression. The level of engagement with providers was presented as a key attribute of attaining viral suppression. The participants narrated their experiences with viral load testing within the routine services. However, they revealed experiencing some proximate barriers to suppression including anticipated stigma, challenges with non-disclosure of HIV status, pregnancy distress, and distance to the health facility.
Conclusion: The understanding and interpretation of viral suppression among pregnant and breastfeeding mothers living with HIV provides a basis for adopting behaviors leading to prevention of vertical transmission of HIV. Health care workers can support women by providing clear and culturally appropriate education about viral suppression, adherence strategies and creating a supportive and non-judgmental environment.
期刊介绍：
Discover Social Science and Health is an interdisciplinary, international journal that publishes papers at the intersection of the social and biomedical sciences. Papers should integrate, in both theory and measures, a social perspective (reflecting anthropology, criminology, economics, epidemiology, policy, sociology, etc) and a concern for health (mental and physical). Health, broadly construed, includes biological and other indicators of overall health, symptoms, diseases, diagnoses, treatments, treatment adherence, and related concerns. Drawing on diverse, sound methodologies, submissions may include reports of new empirical findings (including important null findings) and replications, reviews and perspectives that construe prior research and discuss future research agendas, methodological research (including the evaluation of measures, samples, and modeling strategies), and short or long commentaries on topics of wide interest. All submissions should include statements of significance with respect to health and future research. Discover Social Science and Health is an Open Access journal that supports the pre-registration of studies.
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Papers suitable for Discover Social Science and Health will include both social and biomedical theory and data. Illustrative examples of themes include race/ethnicity, sex/gender, socioeconomic, geographic, and other social disparities in health; migration and health; spatial distribution of risk factors and access to healthcare; health and social relationships; interactional processes in healthcare, treatments, and outcomes; life course patterns of health and treatment regimens; cross-national patterns in health and health policies; characteristics of communities and neighborhoods and health; social networks and treatment adherence; stigma and disease progression; methodological studies including psychometric properties of measures frequently used in health research; and commentary and analysis of key concepts, theories, and methods in studies of social science and biomedicine. The journal welcomes submissions that draw on biomarkers of health, genetically-informed and neuroimaging data, psychophysiological measures, and other forms of data that describe physical and mental health, access to health care, treatment, and related constructs.
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