探索加拿大新不伦瑞克省癌症幸存者及其照顾者获得支持性护理服务的经验。

Canadian Oncology Nursing Journal Pub Date : 2024-11-01 eCollection Date: 2024-01-01 DOI:10.5737/23688076344523
Charlotte Schwarz, Alison Luke, Julia Besner, Luke MacNeill, Lauren Renée Ashfield, Julie Easley, Stephanie McIntosh-Lawrence, Shelley Doucet
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引用次数: 0

摘要

支持性护理服务可以减轻癌症幸存者及其照顾者的痛苦,提高他们的生活质量。然而,人们往往很难获得这些服务。考虑到这一问题,本研究旨在探讨加拿大新不伦瑞克省癌症幸存者及其照顾者在获得支持性护理服务方面的经验,以及他们对省级支持性护理中心的潜在兴趣。44 人参加了一项在线或邮寄调查,旨在了解他们获得支持性护理服务的经历和支持性护理需求。调查结果显示了对参与者最重要的支持性护理服务(如精神和情感支持)。许多参与者指出,他们不知道是否有后续服务以及获得服务的方法。参与者有各种未满足的护理要求,包括缺乏信息支持和护理协调。所有参与者都表示,他们希望在新不伦瑞克省建立一个支持性护理中心。这些研究结果为改善对这一人群的癌症支持性护理的协调和提供提出了重要建议。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Exploring the experiences of cancer survivors and their caregivers accessing supportive care services in New Brunswick, Canada.

Supportive care services can reduce distress and improve quality of life for cancer survivors and their caregivers. However, people often struggle to access these services. With this issue in mind, the current study aimed to explore the experiences of cancer survivors and their caregivers in accessing supportive care services in New Brunswick, Canada, as well as their prospective interest in a provincial supportive care centre. Forty-four individuals participated in an online or mail survey designed to identify experiences accessing supportive care services and supportive care needs. Results indicated the supportive care services that are most important to participants (e.g., mental and emotional support). Many participants noted that they were unaware of the availability of follow-up services and methods of access. Participants had a variety of unmet care requirements including lack of informational support and care coordination. All participants reported that they would like to have a supportive care centre in New Brunswick. These findings offer important recommendations for improving the coordination and delivery of supportive cancer care for this population.

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来源期刊
自引率
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发文量
55
期刊介绍: The Canadian Oncology Nursing Journal is published quarterly in the Winter, Spring, Summer and Fall. The CONJ is the only Canadian publication in cancer nursing. It is a bilingual, peer-reviewed journal dedicated to the interests of the professional nurse who provides care to patients with cancer and their families. The journal endeavours to publish timely papers, promote the image of the nurse involved in cancer care, stimulate nursing issues in oncology nursing and encourage nurses to publish in national media.
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