有特殊需求儿童的母亲所经历的环境因素。

IF 1 Q4 REHABILITATION
South African Journal of Physiotherapy Pub Date : 2024-10-25 eCollection Date: 2024-01-01 DOI:10.4102/sajp.v80i1.2060
Priscilla Matambanadzo, Anthea J Rhoda
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引用次数: 0

摘要

背景介绍照顾有特殊需要的儿童给照顾者带来了负担。根据《国际功能、残疾和健康分类框架》(ICF),所经历的挑战可以概念化为个人和环境因素:支持照顾者在照顾有特殊需要儿童时的经验,并将这些需要与《国际功能、残疾和健康分类框架》中规定的个人和环境因素联系起来:方法:采用目的性和滚雪球抽样法进行了一项定性探索性研究。采用半结构式访谈收集数据,然后对数据进行专题分析:结果:数据共产生了六个主题。其中两个主题与个人因素有关:失业和护理以及婚姻的不确定性。其他四个主题与环境因素有关:家庭和照顾因素、教育因素、健康系统挑战以及对有特殊需要儿童的看法:有特殊需要儿童的照顾者经历了个人挑战,从而产生了与家庭和社会隔绝的感觉。他们还面临着教育和卫生等部门的环境挑战:临床意义:对有特殊需求儿童的管理应包括在其所处环境中采取干预措施,以协助照顾者完成任务。这将有助于提高照顾者及其子女的生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Contextual factors experienced by mothers of children with special needs.

Background: Caring for children with special needs places a burden on caregivers. The challenges experienced can be conceptualised as personal and environmental, as per the International Classification of Functioning, Disability and Health Framework (ICF).

Objectives: Supported the caregiver experiences when caring for children with special needs and to conceptualise these needs in relation to the personal and environmental factors set out in the ICF.

Method: A qualitative exploratory study was conducted, using purposive and snowball sampling. Semi-structured interviews were used to collect the data, which were then analysed thematically.

Results: A total of six themes arose from the data. Two of these were related to personal factors: unemployment and caregiving, and marital uncertainty. The other four themes were related to environmental factors: family and caregiving factors, educational factors, health-systems challenges and perceptions of children with special needs.

Conclusion: Caregivers of children with special needs experienced personal challenges, which resulted in feelings of isolation from family and society. They also faced environmental challenges in sectors such as education and health.

Clinical implications: The management of children with special needs should include interventions within their environments to assist caregivers with their tasks. This could contribute to improved quality of life for both the caregivers and their children.

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来源期刊
CiteScore
1.70
自引率
9.10%
发文量
35
审稿时长
30 weeks
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