炎症性肠病过渡期护理的有效性;过渡期成功评分的开发、验证和初步结果。

Martha Ac van Gaalen, Merel van Pieterson, Petra Waaijenberg, Angelika Kindermann, Victorien M Wolters, Alie Dijkstra, Herbert van Wering, Margreet Wessels, Lissy de Ridder, Dimitris Rizopoulos, C Lauranne Aap Derikx, Johanna C Escher
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摘要

背景和目的:炎症性肠病青少年患者从儿科医疗向成人医疗过渡方案的有效性尚不明确,因为缺乏使用经过验证的过渡结果衡量标准的前瞻性研究。本研究旨在开发和验证一种量化的 "成功过渡评分",并将其应用于多中心环境,以评估过渡护理的有效性:方法:通过与 IBD 利益相关者进行国际德尔菲研究,确定了与成功过渡相关的 10 大结果项目,并将其整合到通用问卷中,即 "成功过渡评分"。在一项前瞻性多中心研究中,成年医护人员、年轻成年患者和护理人员在转院 9-15 个月后对成功转院评分:结果:荷兰七家医院的 160 名患者完成了 "成功转院评分"。平均得分为 25 分(17-27 分不等),25.6% 的患者达到最高分。对构建有效性的假设检验显示,该评分与过渡护理的相关特征(如知识、独立性和生活质量)有显著关联(P 结论:过渡成功评分可作为过渡护理的一种工具:成功过渡评分可作为一种量化工具,用于评估过渡护理干预措施的有效性,并识别炎症性肠病患者在向成人医疗保健过渡期间可能遇到的挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Effectiveness of transitional care in Inflammatory Bowel Disease; Development, Validation, and Initial outcomes of a Transition Success Score.

Background and aims: The effectiveness of transition programs from paediatric to adult healthcare in adolescents with inflammatory bowel disease is not clear, as prospective studies using validated outcome measures for transition are lacking. This study aimed to develop and validate a quantitative Transition Success Score, and to apply it in a multicenter setting to assess the effectiveness of transitional care.

Methods: The Top 10 outcome items related to successful transition, identified through an international Delphi study with IBD stakeholders, were integrated into a generic questionnaire, the Transition Success Score. In a prospective, multicenter study, Transition Success Score was scored by adult healthcare providers, young adult patients and caregivers, 9-15 months after transfer of care.

Results: In seven Dutch hospitals, 160 patients completed the Transition Success Score. The mean score was 25 (range 17-27), 25.6% of patients achieving maximum score. Hypothesis testing for construct validity revealed significant associations with characteristics related to transitional care, such as knowledge, independence, and quality of life (p <0.005). Structural validation indicated the score was most effective at discerning lower levels of transition success. Internal consistency was acceptable (0.64). High disease burden, exacerbation during or after transfer, and certain personality profiles were associated with lower scores.

Conclusions: The Transition Success Score serves as a quantitative tool to evaluate the effectiveness of transitional care interventions and to identify inflammatory bowel disease patients at risk of encountering challenges during the transition to adult healthcare.

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