美国患者和医护人员对脂溢性皮炎疾病负担的看法:全国调查结果。

IF 3.5 3区 医学 Q1 DERMATOLOGY
Dermatology and Therapy Pub Date : 2024-11-01 Epub Date: 2024-10-28 DOI:10.1007/s13555-024-01288-9
Meredith T Polaskey, Lakshi Aldredge, Candrice Heath, Moises Acevedo, David H Chu, Diane Hanna, Melissa S Seal, Matthew Zirwas, Raj Chovatiya
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引用次数: 0

摘要

导言:脂溢性皮炎(SD)是一种常见的慢性炎症性皮肤病,但SD患者的身体和精神负担尚未得到很好的描述:哈里斯民意调查公司于 2021 年 12 月至 2022 年 1 月对美国患者和医疗保健提供者(HCPs)进行了在线调查:结果:近一半的患者表示 SD 对他们的情绪和身体健康造成了 "很大/非常大 "的负面影响;医疗保健提供者低估了对患者的影响程度。大多数 SD 患者表示心理健康受到严重影响,包括焦虑、抑郁、与他人交往焦虑和孤独。三分之二的患者表示他们不认识其他被诊断出患有 SD 的人,即使在确诊后,仍有不到一半的患者表示他们不认识其他患有 SD 的人。几乎所有患者和保健医生都认为,隐藏 SD 症状是一项挑战,当人们评论他们的 SD 症状时,大多数患者都会感到尴尬。大多数患者都认为,如果他们没有 SD 症状,他们在职业生涯中会走得更远,SD 症状会让他们在工作中更不自信,也更不愿意在工作中与人交流。近一半的患者表示曾因 SD 症状而缺勤:这些见解强调了SD给患者带来的身体和精神负担,影响了患者生活的方方面面。本文有图表摘要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patient and Healthcare Provider Perspectives on Disease Burden of Seborrheic Dermatitis in the United States: Results from a National Survey.

Introduction: Seborrheic dermatitis (SD) is a common, chronic inflammatory skin disease, but the physical and emotional burden of patients with SD experience has not been well characterized.

Methods: The Harris Poll conducted online surveys of US patients and healthcare providers (HCPs) from December 2021 to January 2022.

Results: Almost half of patients reported that SD negatively impacts their emotional and physical well-being "a lot/a great deal"; HCPs underestimate the level of impact on patients. Most patients with SD reported a significant mental health impact, including anxiety, depression, anxiety about interacting with other people, and isolation. Two-thirds of patients said they did not know anyone else who had been diagnosed with SD, and even after diagnosis, less than half of patients still said they did not know anyone else with SD. Nearly all patients and HCPs agreed that it was challenging to hide SD symptoms, and most patients felt embarrassed when people commented on their SD symptoms. Most patients agreed that they would be further along in their career if they did not have SD, and SD symptoms made them less confident at work and less likely to want to interact with people at work. Almost half of patients reported ever missing work as a result of SD symptoms.

Conclusion: These insights emphasize the physical and emotional patient burden associated with SD, impacting all aspects of patients' lives. Graphical abstract available for this article.

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来源期刊
Dermatology and Therapy
Dermatology and Therapy Medicine-Dermatology
CiteScore
6.00
自引率
8.80%
发文量
187
审稿时长
6 weeks
期刊介绍: Dermatology and Therapy is an international, open access, peer-reviewed, rapid publication journal (peer review in 2 weeks, published 3–4 weeks from acceptance). The journal is dedicated to the publication of high-quality clinical (all phases), observational, real-world, and health outcomes research around the discovery, development, and use of dermatological therapies. Studies relating to diagnosis, pharmacoeconomics, public health and epidemiology, quality of life, and patient care, management, and education are also encouraged. Areas of focus include, but are not limited to all clinical aspects of dermatology, such as skin pharmacology; skin development and aging; prevention, diagnosis, and management of skin disorders and melanomas; research into dermal structures and pathology; and all areas of aesthetic dermatology, including skin maintenance, dermatological surgery, and lasers. The journal is of interest to a broad audience of pharmaceutical and healthcare professionals and publishes original research, reviews, case reports/case series, trial protocols, and short communications. Dermatology and Therapy will consider all scientifically sound research be it positive, confirmatory or negative data. Submissions are welcomed whether they relate to an International and/or a country-specific audience, something that is crucially important when researchers are trying to target more specific patient populations. This inclusive approach allows the journal to assist in the dissemination of quality research, which may be considered of insufficient interest by other journals. The journal appeals to a global audience and receives submissions from all over the world.
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