各取所需还是各取所需:关于首发精神病患者长期康复过程中精神健康和福利服务体验的定性研究》。

IF 1.8 4区 医学 Q3 HEALTH POLICY & SERVICES
Gina Åsbø, Hanne Haavind, Sindre Hembre Kruse, Kristin Fjelnseth Wold, Wenche Ten Velden Hegelstad, Kristin Lie Romm, Mike Slade, Torill Ueland, Ingrid Melle, Carmen Simonsen
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引用次数: 0

摘要

对首发精神病(精神分裂症和双相情感障碍)患者在长期康复(临床和个人)过程中如何体验与他们互动的精神健康和福利服务的研究并不多见,但却具有重要意义。因此,我们旨在探索 FEP 患者认为这些服务的哪些方面对他们的长期康复非常重要。在这项基于访谈的定性研究中,我们从挪威两项FEP长期跟踪研究(TOP 10年和TIPS 20年)中抽取了20名临床和/或个人康复参与者。研究团队将服务使用者的经验纳入其中。基于个人康复经历的演绎分析产生了五个服务方面。尽管提到了药物、心理治疗和就业支持,但很少有具体类型的干预措施被报告用于促进康复。参与者重视以合作为基础的服务,重视他们的资源而不是局限性。与会者强调了目标一致的长期跟踪的重要性,以及将照顾者和同伴纳入其中的重要性。福利服务通过支持基本需求和安全来促进康复,但有些人在不参与劳动力市场时会受到社会排斥。这项研究的独特之处在于从服务使用者的角度探讨了包括福利服务在内的各种服务在家庭护理方案的长期康复过程中发挥的作用。参加者评价说,服务通过支持他们的个人资源,在长期康复中发挥了更为间接的作用,尽管他们所需要的服务往往没有提供给他们。他们的专业经验提供了宝贵的知识。更好地协调服务并始终如一地落实这些知识,对于支持家庭保护计划的康复工作至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Taking what you get or Getting what you Need: A Qualitative Study on Experiences with Mental Health and Welfare Services in Long-Term Recovery in First-Episode Psychosis.

How people in long-term recovery (clinical and personal) in first-episode psychosis (schizophrenia and bipolar spectrum disorders) experience the mental health and welfare services they interact with is not frequently studied but has significant implications. We therefore aimed to explore which aspects of these services people with FEP evaluate as important for their long-term recovery. Twenty participants in clinical and/or personal recovery from two Norwegian long-term follow-up studies after FEP (TOP 10-year and TIPS 20-year) were sampled for this interview-based qualitative study. The research-team included service user experience. A deductive analysis based on personal accounts of recovery generated five service aspects. Few specific types of interventions were reported to promote recovery although medications, psychotherapy and employment support were mentioned. Participants valued services based in collaboration and that focused on their resources rather than limitations. The importance of long-term follow-up with a consistent aim was highlighted, as was the inclusion of caregivers and peers. Welfare services contributed to recovery by supporting basic needs and safety, but some experienced social exclusion when not participating in the labor market. This study is unique in exploring the role of services, including welfare, in long-term FEP recovery from service user perspectives. Participants evaluated that services played a more indirect role in long-term recovery by supporting their personal resources, although what they needed from services had frequently not been offered. Their expertise by experience contributes valuable knowledge. Better service coordination and consistent implementation of this knowledge are crucial to support recovery in FEP.

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来源期刊
CiteScore
5.30
自引率
3.70%
发文量
133
期刊介绍: Community Mental Health Journal focuses on the needs of people experiencing serious forms of psychological distress, as well as the structures established to address those needs. Areas of particular interest include critical examination of current paradigms of diagnosis and treatment, socio-structural determinants of mental health, social hierarchies within the public mental health systems, and the intersection of public mental health programs and social/racial justice and health equity. While this is the journal of the American Association for Community Psychiatry, we welcome manuscripts reflecting research from a range of disciplines on recovery-oriented services, public health policy, clinical delivery systems, advocacy, and emerging and innovative practices.
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