为接受居家姑息治疗的晚期癌症患者制定简单的患者报告结果测量方法。

IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES
Indian Journal of Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-08-14 DOI:10.25259/IJPC_100_2024
Porntip Preechachaiyawit, Jiruth Sriratanaban, Bhorn-Ake Manasvanich
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引用次数: 0

摘要

目的为接受居家姑息关怀的晚期癌症患者开发一种有效、可靠且便于患者或护理人员使用的患者报告结果测量方法(PROMs-TCP),以显示患者对护理团队援助的迫切需求:三步法包括文献回顾、焦点小组和问卷测试。169 名晚期癌症患者在泰国的癌症医院、三级医院和大学医学院接受姑息治疗。PROMs-TCP 包括五个总分 10 分的关键问题和一个补充问题。对 PROMs-TCP 的内容效度、内部一致性和评分者之间的可靠性、标准效度、判别效度和对变化的敏感性进行了测试。结果:结果:PROMs-TCP 包括五个问题。项目级内容效度指数(CVI)介于 0.8 至 1 之间,量表级内容效度指数为 0.97。PROMs-TCP 与 POS 评分的相关性良好,相关性在-0.7 至-0.8 之间。内部一致性良好(Cronbach's α = 0.85),患者与护理人员之间以及患者与护士之间的评分者间一致性为中等至良好(Cohen's 加权 k = 0.69-0.87)。该工具可以合理地区分患者的糟糕日子和好日子。此外,该工具还能对评分变化做出反应,其效应大小为 0.36:PROMs-TCP可用于居家癌症晚期患者的日常健康状况评估,支持在基层医疗机构提供姑息治疗。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Development of a Simple Patient-reported Outcome Measurement for Terminally Ill Cancer Patients Receiving Home-based Palliative Care.

Objective: To develop a patient-reported outcome measurement for terminally ill cancer patients (PROMs-TCP) receiving home-based palliative care, which is valid, reliable and easy to use by patients or caregivers to indicate urgent needs for assistance from the care team.

Materials and methods: Three-step approach consisting of literature review, focus groups and questionnaire testing. 169 terminally ill cancer patients who received palliative care at Cancer hospital, tertiary-care hospital and university school of medicine in Thailand. The PROMs-TCP comprised five key questions with a total score of 10 and one supplemental question. PROMs-TCP was tested for content validity, internal consistency and inter-rater reliability, criterion validity, discriminant validity and sensitivity to change. The palliative care outcome scale (POS) was used as an indicator.

Results: PROMs-TCP consists of five questions. The item-level content validity index (CVI) ranged from 0.8 to 1, and the scale-level CVI was 0.97. PROMs-TCP correlated well with POS scores, with correlations ranging from -0.7 to -0.8. Internal consistency was good (Cronbach's α = 0.85), while inter-rater agreements between patients and caregivers and between patients and nurses were moderate to good (Cohen's weighted k = 0.69-0.87). The tool could reasonably discriminate terrible days from good days for the patients. It was also responsive to change scores, with effect size scores of 0.36.

Conclusion: PROMs-TCP could be used for daily health status assessment of home-based patients with terminally ill cancer, supporting the provision of palliative care in primary care settings.

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来源期刊
Indian Journal of Palliative Care
Indian Journal of Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.30
自引率
0.00%
发文量
57
期刊介绍: Welcome to the website of the Indian Journal of Palliative Care. You have free full text access to recent issues of the journal. The links connect you to •guidelines and systematic reviews in palliative care and oncology •a directory of palliative care programmes in India and IAPC membership •Palliative Care Formulary, book reviews and other educational material •guidance on statistical tests and medical writing.
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