一项定性研究,探索首次发作精神病患者家属对远程保健干预的接受程度:PERCEPTION.

IF 1.8 Q3 PSYCHIATRY
David Marshall, Donal O' Keeffe, Megan Carroll, Emily Cleary, Dearbhail Ryan, Eimear Counihan, Sean Naughton, Eoin Geary, Mary Clarke
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引用次数: 0

摘要

目的:首次发病的精神病患者(FEP)的家庭成员会承受很大的照顾者负担、耻辱感、情感挑战和不确定性。这表明需要提供支持和心理教育。为了在 COVID-19 大流行期间满足这些需求,我们为 FEP 服务使用者的家庭成员开发了一种多学科、混合式远程医疗干预措施,其中包含心理教育和同伴支持:PERCEPTION(利用远程保健、面对面会议和在线同伴支持对当前经历过精神病患者的亲属进行心理教育)。本研究旨在探讨 PERCEPTION 对精神病患者家属的可接受性:方法:通过 Zoom 在线进行了十次半结构化访谈,并进行了录音。我们采用了最大变异抽样法来招募样本,样本的年龄、性别、亲属之前使用精神健康服务的经历以及参与者与经历过精神病的家庭成员的关系都得到了平衡。采用反思性主题分析法对数据进行手工分析:产生了四个主题:"培养理解和应对精神病的信心";"应对广泛接受和理想干预措施的微小挑战";"及时的支持丰富了干预措施的意义";以及 "应对照顾者的现实负担":总体而言,"感知 "项目被认为是可以接受的,参与者强调了其便利、安全和支持性的环境,以及在参与过程中遇到的挑战。数据表明,在为亲属提供长期自我护理支持以减轻照顾者负担的服务方面存在差距。根据个人的偏好和需求,同时提供面对面和在线干预,可能有助于消除家庭成员获得帮助的障碍。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A qualitative study exploring the acceptability of a telehealth intervention for family members of people experiencing a first episode psychosis: PERCEPTION.

Objectives: Family members of people experiencing a first-episode psychosis (FEP) can experience high levels of carer burden, stigma, emotional challenges, and uncertainty. This indicates the need for support and psychoeducation. To address these needs during the COVID-19 pandemic, we developed a multidisciplinary, blended, telehealth intervention, incorporating psychoeducation and peer support, for family members of FEP service users: PERCEPTION (PsychoEducation for Relatives of people Currently Experiencing Psychosis using Telehealth, an In-person meeting, and ONline peer support). The aim of the study was to explore the acceptability of PERCEPTION for family members of people who have experienced an FEP.

Methods: Ten semi-structured interviews were conducted online via Zoom and audio recorded. Maximum variation sampling was used to recruit a sample balanced across age, gender, relatives' prior mental health service use experience, and participants' relationship with the family member experiencing psychosis. Data were analysed by hand using reflexive thematic analysis.

Results: Four themes were produced: 'Developing confidence in understanding and responding to psychosis'; 'Navigating the small challenges of a broadly acceptable and desirable intervention'; 'Timely support enriches the intervention's meaning'; and 'Dealing with the realities of carer burden'.

Conclusions: Broadly speaking, PERCEPTION was experienced as acceptable, with the convenient, safe, and supportive environment, and challenges in engagement being highlighted by participants. Data point to a gap in service provision for long-term self-care support for relatives to reduce carer burden. Providing both in-person and online interventions, depending on individuals' preference and needs, may help remove barriers for family members accessing help.

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来源期刊
CiteScore
9.10
自引率
3.90%
发文量
51
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