对特应性皮炎患儿母亲的定性研究:情感和社会影响。

Q3 Medicine
Mariana Muzzolon, Nathaly Lamas Garcez, Renata R Imoto, Claire Lazzaretti, Vânia Oliveira de Carvalho
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引用次数: 0

摘要

简介特应性皮炎(AD)是儿童时期最常见的皮肤病,其控制需要家庭成员的支持。这种疾病严重影响了儿童和家庭的生活质量(QoL),然而,有关这种疾病对照顾者的社会和情感影响的文献却很缺乏:评估注意力缺失症对患儿母亲的情感和社会影响:这是一项定性研究,对确诊为注意力缺失症患儿的母亲进行了半结构化访谈。对以下变量进行了评估:诊断和开始治疗、对该疾病的了解以及对母亲生活的影响。采用劳伦斯-巴丁(Lawrence Bardin)的内容分析技术对材料进行了分析。通过 SCORAD 对注意力缺失症的严重程度进行了评估:共对 23 位确诊为注意力缺失症儿童的母亲进行了访谈。在 82.6% 的案例中,母亲在首次接触该疾病时产生了冲突。43.5%的病例中,母亲全权负责孩子的治疗。约 56.6%的母亲将注意力缺失症定义为痛苦和困难的根源,21.7%的母亲指出注意力缺失症的经历是一种学习经历:结论:注意力缺失症是一种慢性疾病,会对母亲的生活造成心理和社会影响。结论:注意力缺失症是一种慢性疾病,会对母亲的生活造成心理和社会影响。在治疗注意力缺失症的过程中,必须对母亲进行筛查,并为她们提供心理支持,以提高她们对治疗的长期依从性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Qualitative study with mothers of children with atopic dermatitis: emotional and social impacts.

Introduction: Atopic Dermatitis (AD) is the most common skin disease in childhood and its control requires the support of the family members. This disease significantly interferes with the Quality of Life (QoL) of children and families, however, literature on the social and emotional impact of the disease on the caregivers is lacking.

Objective: To evaluate the emotional and social impact of AD on mothers of children with the disease.

Method: This is a qualitative study of semi-structured interviews with mothers of children diagnosed with AD. The following variables were evaluated: diagnosis and start of treatment, knowledge about the disease, and impact on the mothers' lives. The material was analyzed using Lawrence Bardin's content analysis technique. The AD severity was assessed by SCORAD.

Results: A total of 23 interviews were conducted with mothers of children diagnosed with AD. In 82.6% of the cases, the mothers presented conflicts in the face of the first contacts with the disease. In 43.5% of cases, mothers were solely responsible for their children's treatment. About 56.6% defined AD as a cause of suffering and difficulty and 21.7% pointed out the AD experience as a learning experience.

Conclusion: The AD is a chronic disease that has a psychological and social impact on the lives of mothers. In the treatment of AD, mothers must be screened and offered psychological support to improve adherence to treatment in the long term.

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来源期刊
Tunisie Medicale
Tunisie Medicale Medicine-Medicine (all)
CiteScore
1.00
自引率
0.00%
发文量
72
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