人权与亲属对养老院痴呆症患者参与方式的解读

IF 1.4 Q2 SOCIAL WORK
Cecilia Ingard, Maria Sjölund, Sven Trygged
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引用次数: 0

摘要

行使自决权是一项人权;然而,对于痴呆症患者(PWD)来说,逐渐出现的身体和认知障碍会对他们的决策过程产生负面影响。对于痴呆症患者来说,通常是由他们的亲属来做决定。这项定性研究包括对 16 名住在疗养院的残疾人亲属进行访谈。研究问题如下亲属如何理解住在养老院的残疾人的参与?共同研究者如何理解参与和亲属的角色?在设计问题时咨询了一位共同研究者。在与亲属的访谈中,使用了照片来激发讨论。与亲属讨论了疗养院中的危急情况,随后与一名共同研究者一起进行了解释。研究结果包括了解亲属如何在残疾人中发挥关键作用;然而,亲属担心残疾人无法参与决策。此外,亲属还指出了养老院反对人权的方式,合作研究者也强调了与人权相冲突的情况。在政策层面将痴呆症归为残疾可以加强残疾人的权利问题。本研究的主要发现对于安排残疾人入住疗养院的社会工作者至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Human Rights and the Ways Relatives Interpret Participation for People with Dementia in Nursing Homes

Human Rights and the Ways Relatives Interpret Participation for People with Dementia in Nursing Homes

The exercise of self-determination is a human right; however, for people with dementia (PWD), progressive physical and cognitive impairment negatively affects their decision-making processes. For PWD, it is often relatives who make such decisions. This qualitative study included interviews with sixteen relatives of PWD who live in nursing homes. Research questions are as follows: How do relatives understand the participation of PWD who live in nursing homes? How do co-researchers understand participation and the role of relatives? A co-researcher was consulted when the questions were designed. During the interviews with relatives, photos were used to stimulate discussion. Critical situations in nursing homes were discussed with relatives and later interpreted together with a co-researcher. The findings included an understanding of how relatives played a key role in PWD; however, relatives were concerned that PWD were unable to take part in decisions. In addition, relatives named ways that nursing homes opposed human rights, and the co-researchers also highlighted situations that conflicted with human rights. Classifying dementia as a disability at the policy level could strengthen the rights issues of PWD. The key findings of the study are essential for social workers arranging for placement of PWD in nursing homes.

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来源期刊
CiteScore
2.00
自引率
8.30%
发文量
33
期刊介绍: This journal offers an outlet for articles that support social work as a human rights profession. It brings together knowledge about addressing human rights in practice, research, policy, and advocacy as well as teaching about human rights from around the globe. Articles explore the history of social work as a human rights profession; familiarize participants on how to advance human rights using the human rights documents from the United Nations; present the types of monitoring and assessment that takes place internationally and within the U.S.; demonstrate rights-based practice approaches and techniques; and facilitate discussion of the implications of human rights tools and the framework for social work practice.
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