Fernanda Iscorsoni,Kátia M P Bueno,Aline M Feitosa,Marisa C Mancini,Marina B Brandão
{"title":"培养自理能力和家务能力:一项针对脑瘫青少年及其照护者的定性研究。","authors":"Fernanda Iscorsoni,Kátia M P Bueno,Aline M Feitosa,Marisa C Mancini,Marina B Brandão","doi":"10.1080/09638288.2024.2401142","DOIUrl":null,"url":null,"abstract":"PURPOSE\r\nAdolescents with cerebral palsy (CP) may experience limitations in self-care and household tasks. The aim of the study was to understand the process of building independence in self-care and household tasks from the perspective of adolescents and their caregivers.\r\n\r\nMATERIALS AND METHODS\r\nWe conducted a qualitative study with a phenomenological approach with 10 adolescents (15-17 years old) and 11 caregivers from a transition service in Brazil. Semistructured, remote interviews were conducted with each participant. The interviews were recorded for transcription and content analysis.\r\n\r\nRESULTS\r\nTwo thematic categories emerged: (1) \"Thinking about independence\" and (2) \"Possible ways to foster independence.\" The first category was divided into three subcategories: \"Expectations and the desire to be independent,\" \"Obstacles to independence,\" \"Concerns about the future.\" The second category was divided into four subcategories: \"People and places,\" \"Opportunities for practice,\" \"Personal attitude\" and \"Adaptations that facilitate.\"\r\n\r\nCONCLUSION\r\nAdolescents' independence in several everyday activities involves physical, socioemotional and environmental aspects. Enabling opportunities for practice, an adapted environment, support from rehabilitation services and developing collaborative relationships with caregivers are elements that may favor the independence of adolescents with CP.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1000,"publicationDate":"2024-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Building independence in self-care and household tasks: a qualitative study with adolescents with cerebral palsy and their caregivers.\",\"authors\":\"Fernanda Iscorsoni,Kátia M P Bueno,Aline M Feitosa,Marisa C Mancini,Marina B Brandão\",\"doi\":\"10.1080/09638288.2024.2401142\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"PURPOSE\\r\\nAdolescents with cerebral palsy (CP) may experience limitations in self-care and household tasks. The aim of the study was to understand the process of building independence in self-care and household tasks from the perspective of adolescents and their caregivers.\\r\\n\\r\\nMATERIALS AND METHODS\\r\\nWe conducted a qualitative study with a phenomenological approach with 10 adolescents (15-17 years old) and 11 caregivers from a transition service in Brazil. Semistructured, remote interviews were conducted with each participant. The interviews were recorded for transcription and content analysis.\\r\\n\\r\\nRESULTS\\r\\nTwo thematic categories emerged: (1) \\\"Thinking about independence\\\" and (2) \\\"Possible ways to foster independence.\\\" The first category was divided into three subcategories: \\\"Expectations and the desire to be independent,\\\" \\\"Obstacles to independence,\\\" \\\"Concerns about the future.\\\" The second category was divided into four subcategories: \\\"People and places,\\\" \\\"Opportunities for practice,\\\" \\\"Personal attitude\\\" and \\\"Adaptations that facilitate.\\\"\\r\\n\\r\\nCONCLUSION\\r\\nAdolescents' independence in several everyday activities involves physical, socioemotional and environmental aspects. Enabling opportunities for practice, an adapted environment, support from rehabilitation services and developing collaborative relationships with caregivers are elements that may favor the independence of adolescents with CP.\",\"PeriodicalId\":50575,\"journal\":{\"name\":\"Disability and Rehabilitation\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2024-09-10\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Disability and Rehabilitation\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/09638288.2024.2401142\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"REHABILITATION\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Disability and Rehabilitation","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/09638288.2024.2401142","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"REHABILITATION","Score":null,"Total":0}
Building independence in self-care and household tasks: a qualitative study with adolescents with cerebral palsy and their caregivers.
PURPOSE
Adolescents with cerebral palsy (CP) may experience limitations in self-care and household tasks. The aim of the study was to understand the process of building independence in self-care and household tasks from the perspective of adolescents and their caregivers.
MATERIALS AND METHODS
We conducted a qualitative study with a phenomenological approach with 10 adolescents (15-17 years old) and 11 caregivers from a transition service in Brazil. Semistructured, remote interviews were conducted with each participant. The interviews were recorded for transcription and content analysis.
RESULTS
Two thematic categories emerged: (1) "Thinking about independence" and (2) "Possible ways to foster independence." The first category was divided into three subcategories: "Expectations and the desire to be independent," "Obstacles to independence," "Concerns about the future." The second category was divided into four subcategories: "People and places," "Opportunities for practice," "Personal attitude" and "Adaptations that facilitate."
CONCLUSION
Adolescents' independence in several everyday activities involves physical, socioemotional and environmental aspects. Enabling opportunities for practice, an adapted environment, support from rehabilitation services and developing collaborative relationships with caregivers are elements that may favor the independence of adolescents with CP.
期刊介绍:
Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.