Valentina Poletti, Gaia Bresciani, Paolo Banfi, Eleonora Volpato
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引用次数: 0
摘要
研究目的本研究旨在调查慢性阻塞性肺病患者的认知和期望的动态模式。研究方法研究在意大利米兰的 Don Carlo Gnocchi 基金会 IRCCS 心脏呼吸康复中心进行,28 名参与者(16 名男性;平均年龄为 72.8 ± 9.9)参加了面对面访谈。研究采用了基础理论方法,并辅以临床数据,通过整合两种图像工具对访谈记录和转录进行了改进。研究结果出现的中心主题是对自己病情的深刻责任感,认为这是对生命的重大威胁。呼吸急促等主要症状,加上对病情的消极预期,导致了抑郁情绪和逃避行为。有相当一部分参与者(17 人,占 60.71%)难以憧憬积极的未来,表现出普遍的绝望感,这极大地影响了他们的健康行为和对医疗建议的依从性。相反,对治疗效果感到支持和乐观的人则表现出更积极的期望,并采取积极的应对策略。讨论:认识到患者对疾病的认知和消极期望的动态性质,对于制定个性化治疗干预措施和满足慢性阻塞性肺病患者的特殊需求至关重要,最终将提高他们在治疗过程中的整体有效性。
Exploring perceptions and expectations of COPD patients: A grounded theory approach for personalized therapeutic interventions.
Objectives: This study aimed to investigate the dynamic patterns of perception and expectations among COPD patients. Methods: Conducted at the Heart-Respiratory Rehabilitation Unit, IRCCS Fondazione Don Carlo Gnocchi, in Milan, Italy, the research involved 28 participants (16 males; mean age 72.8 ± 9.9) in face-to-face interviews. Utilizing a Grounded Theory approach, complemented by clinical data, recorded, and transcribed interviews underwent enhancement through the integration of two pictorial tools. Results: The central theme that emerged was a profound sense of responsibility toward their condition, perceived as a significant threat to life. Key symptoms, such as shortness of breath, coupled with negative expectations about their condition, contributed to depressive mood and avoidance behaviors. A notable proportion (N = 17; 60.71%) of participants struggled to envision a positive future, expressing a pervasive sense of hopelessness, which significantly influenced their health behaviors and adherence to medical recommendations. Conversely, individuals who felt supported and optimistic about treatment efficacy exhibited more positive expectations and adopted proactive coping strategies. Discussion: Recognizing the dynamic nature of patients' perceptions and negative illness expectations is essential to create personalized therapeutic interventions and meet the specific needs of COPD patients, ultimately improving the overall effectiveness of their care journey.
期刊介绍:
Chronic Respiratory Disease is a peer-reviewed, open access, scholarly journal, created in response to the rising incidence of chronic respiratory diseases worldwide. It publishes high quality research papers and original articles that have immediate relevance to clinical practice and its multi-disciplinary perspective reflects the nature of modern treatment. The journal provides a high quality, multi-disciplinary focus for the publication of original papers, reviews and commentary in the broad area of chronic respiratory disease, particularly its treatment and management.