{"title":"了解 COVID-19 大流行:炎症性肠病患者使用博客的情况。","authors":"Dennis Owen Frohlich, Sally Abdul Wahab","doi":"10.1080/10410236.2024.2394717","DOIUrl":null,"url":null,"abstract":"<p><p>During the global COVID-19 pandemic one population that faced special challenges was individuals with preexisting chronic health conditions. In this study, we examined how people with inflammatory bowel disease (IBD) managed their autoimmune disease, considering their increased susceptibility to contracting COVID-19. Specifically, we analyzed how people with IBD made sense of their precarious position through the writing of publicly accessible blogs. We found that for IBD patients, navigating healthcare needs in the context of pandemic-related concerns and restrictions meant grappling with several salient, but conflicting tensions: separation vs. connection, safety vs. exposure, uncertainty vs. control, and resilience vs. vulnerability. People with IBD struggled to find a balance between living with IBD while keeping themselves and their loved ones safe from the virus. While the worst of the COVID-19 pandemic may be over, the underlying disease, and the tensions the disease causes, is still present for people with IBD.</p>","PeriodicalId":12889,"journal":{"name":"Health Communication","volume":" ","pages":"1270-1279"},"PeriodicalIF":3.0000,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Making Sense of the COVID-19 Pandemic: The Use of Blogging by People with Inflammatory Bowel Disease.\",\"authors\":\"Dennis Owen Frohlich, Sally Abdul Wahab\",\"doi\":\"10.1080/10410236.2024.2394717\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>During the global COVID-19 pandemic one population that faced special challenges was individuals with preexisting chronic health conditions. In this study, we examined how people with inflammatory bowel disease (IBD) managed their autoimmune disease, considering their increased susceptibility to contracting COVID-19. Specifically, we analyzed how people with IBD made sense of their precarious position through the writing of publicly accessible blogs. We found that for IBD patients, navigating healthcare needs in the context of pandemic-related concerns and restrictions meant grappling with several salient, but conflicting tensions: separation vs. connection, safety vs. exposure, uncertainty vs. control, and resilience vs. vulnerability. People with IBD struggled to find a balance between living with IBD while keeping themselves and their loved ones safe from the virus. While the worst of the COVID-19 pandemic may be over, the underlying disease, and the tensions the disease causes, is still present for people with IBD.</p>\",\"PeriodicalId\":12889,\"journal\":{\"name\":\"Health Communication\",\"volume\":\" \",\"pages\":\"1270-1279\"},\"PeriodicalIF\":3.0000,\"publicationDate\":\"2025-06-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health Communication\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/10410236.2024.2394717\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/8/30 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"COMMUNICATION\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Communication","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/10410236.2024.2394717","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/8/30 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"COMMUNICATION","Score":null,"Total":0}
Making Sense of the COVID-19 Pandemic: The Use of Blogging by People with Inflammatory Bowel Disease.
During the global COVID-19 pandemic one population that faced special challenges was individuals with preexisting chronic health conditions. In this study, we examined how people with inflammatory bowel disease (IBD) managed their autoimmune disease, considering their increased susceptibility to contracting COVID-19. Specifically, we analyzed how people with IBD made sense of their precarious position through the writing of publicly accessible blogs. We found that for IBD patients, navigating healthcare needs in the context of pandemic-related concerns and restrictions meant grappling with several salient, but conflicting tensions: separation vs. connection, safety vs. exposure, uncertainty vs. control, and resilience vs. vulnerability. People with IBD struggled to find a balance between living with IBD while keeping themselves and their loved ones safe from the virus. While the worst of the COVID-19 pandemic may be over, the underlying disease, and the tensions the disease causes, is still present for people with IBD.
期刊介绍:
As an outlet for scholarly intercourse between medical and social sciences, this noteworthy journal seeks to improve practical communication between caregivers and patients and between institutions and the public. Outstanding editorial board members and contributors from both medical and social science arenas collaborate to meet the challenges inherent in this goal. Although most inclusions are data-based, the journal also publishes pedagogical, methodological, theoretical, and applied articles using both quantitative or qualitative methods.