了解 COVID-19 大流行:炎症性肠病患者使用博客的情况。

IF 3 3区 医学 Q1 COMMUNICATION
Health Communication Pub Date : 2025-06-01 Epub Date: 2024-08-30 DOI:10.1080/10410236.2024.2394717
Dennis Owen Frohlich, Sally Abdul Wahab
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引用次数: 0

摘要

在 COVID-19 全球大流行期间,有一个群体面临着特殊的挑战,那就是患有慢性疾病的人。在这项研究中,考虑到炎症性肠病(IBD)患者更容易感染 COVID-19,我们研究了他们如何管理自身免疫性疾病。具体来说,我们分析了 IBD 患者如何通过撰写公开博客来了解自己岌岌可危的处境。我们发现,对于 IBD 患者来说,在与大流行相关的担忧和限制的背景下满足医疗保健需求意味着要努力应对几种突出但相互冲突的紧张关系:分离与联系、安全与暴露、不确定性与控制、复原力与脆弱性。IBD 患者既要忍受 IBD 的折磨,又要保证自己和亲人免受病毒感染,他们努力在这两者之间寻找平衡。虽然 COVID-19 大流行最严重的时期可能已经过去,但对于 IBD 患者来说,潜在的疾病和疾病导致的紧张关系仍然存在。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Making Sense of the COVID-19 Pandemic: The Use of Blogging by People with Inflammatory Bowel Disease.

During the global COVID-19 pandemic one population that faced special challenges was individuals with preexisting chronic health conditions. In this study, we examined how people with inflammatory bowel disease (IBD) managed their autoimmune disease, considering their increased susceptibility to contracting COVID-19. Specifically, we analyzed how people with IBD made sense of their precarious position through the writing of publicly accessible blogs. We found that for IBD patients, navigating healthcare needs in the context of pandemic-related concerns and restrictions meant grappling with several salient, but conflicting tensions: separation vs. connection, safety vs. exposure, uncertainty vs. control, and resilience vs. vulnerability. People with IBD struggled to find a balance between living with IBD while keeping themselves and their loved ones safe from the virus. While the worst of the COVID-19 pandemic may be over, the underlying disease, and the tensions the disease causes, is still present for people with IBD.

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来源期刊
CiteScore
8.20
自引率
10.30%
发文量
184
期刊介绍: As an outlet for scholarly intercourse between medical and social sciences, this noteworthy journal seeks to improve practical communication between caregivers and patients and between institutions and the public. Outstanding editorial board members and contributors from both medical and social science arenas collaborate to meet the challenges inherent in this goal. Although most inclusions are data-based, the journal also publishes pedagogical, methodological, theoretical, and applied articles using both quantitative or qualitative methods.
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