Understanding Patterns of Supplement Use among Plasma Cell Disorder Patients

Purpose

Individuals diagnosed with plasma cell disorders (PCDs) have a significant interest to incorporate supplements to enhance their health. This survey investigates perceptions, habits, and awareness related to vitamin D, omega-3 fatty acids, turmeric/curcumin, and probiotics.

Methods

Between September 2023 and January 2024, 480 survey responses were gathered through HealthTree Cure Hub. Summary statistics were employed to assess the deidentified survey responses.

Results

The study population was predominantly female (58%), aged 65+ (61%), at least college educated (67%), and from the US (90%). While white participants formed the majority (78%), minorities including African Americans, Hispanics, and American Indian or Alaska Natives comprised 9% of the respondents. Prior to diagnosis, 71% used supplements, with a notable 46% increase post-diagnosis, reaching 95% usage. Patients primarily obtained supplement information from online medical media (45%) or from healthcare providers (oncologists 46%, primary care physicians 34%). Motivations for supplement use were immune system support (70%), preventing nutritional deficiencies (54%), and slowing cancer progression (38%). Notably, 63% of patients discussed supplements with their physicians, with a strong preference for oncologist recommendations (74%). An overwhelming 91% of patients expressed interest in further research on supplement risks and benefits.

Conclusion

This survey highlights the growing demand for further investigation into supplements, as supplement usage increased post-diagnosis and there was a notable preference for oncologist recommendations. Addressing healthcare disparities necessitates diverse participant inclusion in future research endeavors, despite recruitment challenges. Enhanced outreach and enrollment strategies are crucial as research in this area progresses.