在帕金森病患者护理中实施预先护理规划和护理协调:可行性研究。

Herma Lennaerts-Kats, Laura Daeter, Anoek Forkink, Renate K Hukema, Bastiaan R Bloem, Kris C P Vissers, Marjan J Meinders, Marieke M Groot
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引用次数: 0

摘要

摘要:背景:对于帕金森病(PD)中度患者而言,非常需要专门的护理协调与预先护理计划(ACP)相结合。然而,目前还缺乏相关证据。本研究的目的是评估研究过程的可行性和可接受性,为更大规模的随机对照试验提供依据,旨在研究对帕金森病患者进行预先护理规划和护理协调联合干预的有效性。方法:两名具有帕金森病专业知识的执业护士接受了关于ACP和护理协调联合干预的培训。患者应邀参加了为期 12 个月的多次培训。对研究的可行性进行了调查,包括样本招募、自然减员率、资格、干预实施、ACP疗程次数、干预实施类型以及对干预的满意度。结果:共有 27 名患者应邀参加了研究,其中 20 人(74%)与 11 名家庭护理人员一起加入了研究;7 名患者(35%)退出了研究。大多数患者为男性(n = 20),平均年龄为 73.4 岁(标准差为 8.2)。共进行了 71 次 ACP 治疗(平均每位患者 3.6 次),其中 41% 的治疗在家中面对面进行,44% 在医院进行,11% 通过电话进行,4% 通过视频电话会议进行。患者认为干预不仅是支持性的,也是对抗性的。结论:ACP 方面的干预措施对于激发患者思考其当前的护理状况和未来的护理是有用的,也是可行的。护理协调的提供和讨论不太深入。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Implementing Advance Care Planning and Care Coordination in the Care for People With Parkinson Disease: A Feasibility Study.

Abstract: BACKGROUND: For people with a moderate stage of Parkinson disease (PD), dedicated care coordination combined with advance care planning (ACP) is highly needed. However, evidence is lacking. The objective of this study was to assess the feasibility and acceptability of the study processes to inform a larger randomized controlled trial, aiming the effectiveness of a combined intervention on ACP and care coordination for people with PD. METHODS: Two nurse practitioners with expertise in PD followed training on a combined intervention on ACP and care coordination. Patients were invited to participate in several sessions for a period of 12 months. Feasibility of the study was surveyed covering sample recruitment, attrition rate, eligibility, intervention delivery, number of ACP sessions, type of intervention administration, and satisfaction with the intervention. RESULTS: In total, 27 patients were invited to participate, and 20 (74%) enrolled into the study, together with 11 family caregivers; 7 patients (35%) dropped out. Most patients were men (n = 20), with a mean age of 73.4 (SD 8.2) years. In total, 71 ACP sessions were held (3.6 sessions per patient on average), of which 41% of the sessions were conducted face-to-face at home, 44% at the hospital, 11% over telephone, and 4% via a videoconference call. Patients perceived the intervention not only as supportive but also as confronting. CONCLUSION: The ACP aspect of the intervention was useful and feasible to stimulate patients to think about their current care situation as well as about future care. Care coordination was less profoundly provided and discussed.

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