将患者置于医疗信息交换设计的中心:探索患者对数据共享的偏好。

IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Abdulrahman M Jabour
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引用次数: 0

摘要

背景:尽管健康信息交换(HIE)有许多好处,但研究报告称,患者对共享其健康信息的隐私和安全感到担忧。为了消除这些顾虑,在设计和实施 HIE 系统时了解他们的需求、偏好和优先事项非常重要:本研究旨在调查患者对 HIE 同意选项的偏好,并研究他们在多大程度上乐于共享其医疗记录的不同部分:方法:进行一项自填式调查。调查通过网络进行,共有 660 人参与:结果:在共享 HIE 信息方面,受访者选择最多的选项是在注册时经本人同意后共享信息(33.3%),其次是在就诊时根据需要临时共享信息(23.8%)。参与者最愿意共享的信息类型是年龄、体重、身高和性别等一般数据,紧随其后的是医疗急 诊所需的数据。相比之下,参与者不太愿意分享的信息是与经济状况或收入有关的数据,其次是与 性疾病和精神疾病有关的数据。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Putting patients at the center of health information exchange design: An exploration of patient preferences for data sharing.

Background: Despite the many benefits of Health Information Exchange (HIE), Studies reported patients concerns about the privacy and security of sharing their health information. To address these concerns, it is important to understand their needs, preferences, and priorities in the design and implementing HIE systems.

Objective: The aim of this study is to investigate patients' preferences for HIE consent option and examine the extent to which they are comfortable sharing the different parts of their medical records.

Method: A self-administered survey was conducted. The survey was administrated online and the total number of respondents was 660 participants.

Results: The most popular option selected by participants for sharing HIE information was to share information with their permission once when they register (33.3%) followed by the option to share their information temporarily on demand during their clinical visit (23.8%). The types of information which participants were willing to share the most were general data such as age, weight, height, and gender, followed closely by data needed for medical emergency. In contrast, the information which participants were less likely to share were data related to financial status or income, followed by data related to sexual disease, and mental illnesses.

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来源期刊
Health Informatics Journal
Health Informatics Journal HEALTH CARE SCIENCES & SERVICES-MEDICAL INFORMATICS
CiteScore
7.80
自引率
6.70%
发文量
80
审稿时长
6 months
期刊介绍: Health Informatics Journal is an international peer-reviewed journal. All papers submitted to Health Informatics Journal are subject to peer review by members of a carefully appointed editorial board. The journal operates a conventional single-blind reviewing policy in which the reviewer’s name is always concealed from the submitting author.
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