Rosemary Jane Court, Veronica Swallow, Sarab El-Yousfi, Kara Gray-Burrows, Fiona Sotir, Gemma Wheeler, Ian Kellar, Jia Mang Lee, Robyn Mitchell, Wiktoria Mlynarczyk, Arnav Ramavath, Paul Dimitri, Bob Phillips, Lucy Prodgers, Madeleine Pownall, Marcin Kowalczyk, Jacob Branchflower, Lauren Powell, Sadiq Bhanbhro, Anna Weighall, Jacqueline Martin-Kerry
{"title":"儿童和青少年在使用医疗技术自我管理长期疾病时的偏好和需求:范围界定综述。","authors":"Rosemary Jane Court, Veronica Swallow, Sarab El-Yousfi, Kara Gray-Burrows, Fiona Sotir, Gemma Wheeler, Ian Kellar, Jia Mang Lee, Robyn Mitchell, Wiktoria Mlynarczyk, Arnav Ramavath, Paul Dimitri, Bob Phillips, Lucy Prodgers, Madeleine Pownall, Marcin Kowalczyk, Jacob Branchflower, Lauren Powell, Sadiq Bhanbhro, Anna Weighall, Jacqueline Martin-Kerry","doi":"10.1136/archdischild-2023-326044","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.</p><p><strong>Aims: </strong>To identify CYP's reported preferences about health technologies to self-manage LTCs.</p><p><strong>Methods: </strong>We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.</p><p><strong>Results: </strong>161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.</p><p><strong>Conclusions: </strong>This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.</p>","PeriodicalId":8150,"journal":{"name":"Archives of Disease in Childhood","volume":" ","pages":"826-835"},"PeriodicalIF":4.3000,"publicationDate":"2024-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11503065/pdf/","citationCount":"0","resultStr":"{\"title\":\"Children and young people's preferences and needs when using health technology to self-manage a long-term condition: a scoping review.\",\"authors\":\"Rosemary Jane Court, Veronica Swallow, Sarab El-Yousfi, Kara Gray-Burrows, Fiona Sotir, Gemma Wheeler, Ian Kellar, Jia Mang Lee, Robyn Mitchell, Wiktoria Mlynarczyk, Arnav Ramavath, Paul Dimitri, Bob Phillips, Lucy Prodgers, Madeleine Pownall, Marcin Kowalczyk, Jacob Branchflower, Lauren Powell, Sadiq Bhanbhro, Anna Weighall, Jacqueline Martin-Kerry\",\"doi\":\"10.1136/archdischild-2023-326044\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.</p><p><strong>Aims: </strong>To identify CYP's reported preferences about health technologies to self-manage LTCs.</p><p><strong>Methods: </strong>We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.</p><p><strong>Results: </strong>161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.</p><p><strong>Conclusions: </strong>This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.</p>\",\"PeriodicalId\":8150,\"journal\":{\"name\":\"Archives of Disease in Childhood\",\"volume\":\" \",\"pages\":\"826-835\"},\"PeriodicalIF\":4.3000,\"publicationDate\":\"2024-09-25\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11503065/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Archives of Disease in Childhood\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1136/archdischild-2023-326044\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"PEDIATRICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Archives of Disease in Childhood","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1136/archdischild-2023-326044","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PEDIATRICS","Score":null,"Total":0}
Children and young people's preferences and needs when using health technology to self-manage a long-term condition: a scoping review.
Background: The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.
Aims: To identify CYP's reported preferences about health technologies to self-manage LTCs.
Methods: We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.
Results: 161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.
Conclusions: This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.
期刊介绍:
Archives of Disease in Childhood is an international peer review journal that aims to keep paediatricians and others up to date with advances in the diagnosis and treatment of childhood diseases as well as advocacy issues such as child protection. It focuses on all aspects of child health and disease from the perinatal period (in the Fetal and Neonatal edition) through to adolescence. ADC includes original research reports, commentaries, reviews of clinical and policy issues, and evidence reports. Areas covered include: community child health, public health, epidemiology, acute paediatrics, advocacy, and ethics.