{"title":"为协助智障和吞咽困难患者参与饮食而提供的支持:范围审查","authors":"Gillian Cox, Karen Wylie, Suze Leitão, Naomi Cocks","doi":"10.1155/2024/9948361","DOIUrl":null,"url":null,"abstract":"<div>\n <p>Many people with intellectual disability live with swallowing, eating, and drinking difficulties (dysphagia). People living with both intellectual disability and dysphagia may require a range of supports in order to have the opportunity to participate in different eating and drinking environments of their choice. Understanding the nature of those supports is important to ensure that people with intellectual disability living with dysphagia can continue to create a good life for themselves at home and in their community. This study aimed to identify the nature of supports provided to people with intellectual disability and dysphagia when eating and drinking in different environments, as described in the published literature. A scoping review, underpinned by an a priori protocol, was conducted by a team of four reviewers. Four databases were searched. Sixteen papers were included for full-text review. The review identified that studies most frequently reported support in the form of safety strategies to prevent the ill-health consequences of dysphagia and training carers in those safety strategies by speech-language pathologists. To a much lesser extent, studies identified the psychosocial needs of people with intellectual disability and dysphagia and how these were being considered in the design of training support. Overall, this review identified a significant need for future research into supports for eating outside the home and collaboration with people with intellectual disability and dysphagia about dysphagia training content which reflects the experience of living with dysphagia in social community environments.</p>\n </div>","PeriodicalId":48195,"journal":{"name":"Health & Social Care in the Community","volume":null,"pages":null},"PeriodicalIF":2.0000,"publicationDate":"2024-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1155/2024/9948361","citationCount":"0","resultStr":"{\"title\":\"Supports Provided to People with Intellectual Disability and Dysphagia to Assist with Participation in Eating and Drinking: A Scoping Review\",\"authors\":\"Gillian Cox, Karen Wylie, Suze Leitão, Naomi Cocks\",\"doi\":\"10.1155/2024/9948361\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n <p>Many people with intellectual disability live with swallowing, eating, and drinking difficulties (dysphagia). People living with both intellectual disability and dysphagia may require a range of supports in order to have the opportunity to participate in different eating and drinking environments of their choice. Understanding the nature of those supports is important to ensure that people with intellectual disability living with dysphagia can continue to create a good life for themselves at home and in their community. This study aimed to identify the nature of supports provided to people with intellectual disability and dysphagia when eating and drinking in different environments, as described in the published literature. A scoping review, underpinned by an a priori protocol, was conducted by a team of four reviewers. Four databases were searched. Sixteen papers were included for full-text review. The review identified that studies most frequently reported support in the form of safety strategies to prevent the ill-health consequences of dysphagia and training carers in those safety strategies by speech-language pathologists. To a much lesser extent, studies identified the psychosocial needs of people with intellectual disability and dysphagia and how these were being considered in the design of training support. Overall, this review identified a significant need for future research into supports for eating outside the home and collaboration with people with intellectual disability and dysphagia about dysphagia training content which reflects the experience of living with dysphagia in social community environments.</p>\\n </div>\",\"PeriodicalId\":48195,\"journal\":{\"name\":\"Health & Social Care in the Community\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.0000,\"publicationDate\":\"2024-08-07\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1155/2024/9948361\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health & Social Care in the Community\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1155/2024/9948361\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health & Social Care in the Community","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1155/2024/9948361","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
Supports Provided to People with Intellectual Disability and Dysphagia to Assist with Participation in Eating and Drinking: A Scoping Review
Many people with intellectual disability live with swallowing, eating, and drinking difficulties (dysphagia). People living with both intellectual disability and dysphagia may require a range of supports in order to have the opportunity to participate in different eating and drinking environments of their choice. Understanding the nature of those supports is important to ensure that people with intellectual disability living with dysphagia can continue to create a good life for themselves at home and in their community. This study aimed to identify the nature of supports provided to people with intellectual disability and dysphagia when eating and drinking in different environments, as described in the published literature. A scoping review, underpinned by an a priori protocol, was conducted by a team of four reviewers. Four databases were searched. Sixteen papers were included for full-text review. The review identified that studies most frequently reported support in the form of safety strategies to prevent the ill-health consequences of dysphagia and training carers in those safety strategies by speech-language pathologists. To a much lesser extent, studies identified the psychosocial needs of people with intellectual disability and dysphagia and how these were being considered in the design of training support. Overall, this review identified a significant need for future research into supports for eating outside the home and collaboration with people with intellectual disability and dysphagia about dysphagia training content which reflects the experience of living with dysphagia in social community environments.
期刊介绍:
Health and Social Care in the community is an essential journal for anyone involved in nursing, social work, physiotherapy, occupational therapy, general practice, health psychology, health economy, primary health care and the promotion of health. It is an international peer-reviewed journal supporting interdisciplinary collaboration on policy and practice within health and social care in the community. The journal publishes: - Original research papers in all areas of health and social care - Topical health and social care review articles - Policy and practice evaluations - Book reviews - Special issues