胎儿酒精谱系障碍预防和临床指南研究--研讨会报告。

Q2 Biochemistry, Genetics and Molecular Biology
Tracey Pérez Koehlmoos, Elizabeth Lee, Ilse Rivera, Jennifer Wisdahl, Katie Erdman, Tom Donaldson
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引用次数: 0

摘要

据估计,美国每 20 人中就有 1 人可能患有胎儿酒精谱系障碍(FASD),即在产前发育过程中接触酒精而导致的一系列身体、认知、情感和社交障碍(May 等人,JAMA 319:474-82, 2018)。虽然这种情况存在于广泛的个人和家庭中,但此前尚未在军事社区中进行过研究,而军事社区中的文化因素(包括酒精滥用发生率的增加)可能会带来一系列独特的挑战(Health.mil,酒精滥用,2024 年)。2023 年 9 月 20 日,美国卫生科学统一服务大学(USUHS)与 FASD United 联合在华盛顿特区举办了第二届胎儿酒精谱系障碍预防和临床指南研究年度研讨会。作为美国国防部(DoD)军事卫生系统(MHS)一项为期四年、由联邦政府资助的胎儿酒精紊乱症健康服务研究计划的一部分,该研讨会提供了一个论坛,以探讨该计划的重点和进展;检查研究和临床领域的现有知识和实践;并确定进一步改进预防、筛查、诊断、干预和家庭支持的潜在策略。2022 年的研讨会涵盖了产前酒精暴露和 FASD 的科学现状,在此基础上,2023 年的研讨会主要关注 FASD 以及旨在识别和管理 FASD 的工作(Koehlmoos 等人,BMC Proc 17 Suppl 12:19,2023 年)。来自学术界、医疗保健机构、联邦机构和患者权益组织的 130 名与会者齐聚一堂,分享研究成果,学习生活经验,并讨论推进针对高危孕妇以及支持 FASD 患者的家庭和护理人员的研究、筛查和服务的举措。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Fetal alcohol spectrum disorders prevention and clinical guidelines research - workshop report.

It is estimated that up to 1 in 20 people in the United States may have a fetal alcohol spectrum disorder (FASD), or the array of physical, cognitive, emotional, and social disorders caused by exposure to alcohol during prenatal development (May et al., JAMA 319:474-82, 2018). While this condition is present in a broad range of individuals and families, it has not previously been examined in the military community, where cultural factors including an increased prevalence of alcohol misuse may pose a unique set of challenges (Health.mil, Alcohol misuse, 2024).The Uniformed Services University of the Health Sciences (USUHS), in conjunction with FASD United, hosted the second annual Workshop on Fetal Alcohol Spectrum Disorders Prevention and Clinical Guidelines Research on 20 September 2023 in Washington, DC. Organized as part of a four-year, federally-funded health services research initiative on FASD in the U.S. Department of Defense (DoD) Military Health System (MHS), the workshop provided a forum for exploring the initiative's focus and progress; examining current knowledge and practice in the research and clinical spheres; and identifying potential strategies to further improve prevention, screening, diagnosis, interventions, and family support. Building off of the 2022 workshop that covered the state of the science surrounding prenatal alcohol exposure and FASD, the 2023 focused primarily on FASD and efforts aimed at identification and management (Koehlmoos et al., BMC Proc 17 Suppl 12:19, 2023). One hundred and thirty attendees from academia, healthcare, federal agencies, and patient advocacy organizations gathered to share research findings; learn from lived experiences; and discuss initiatives to advance research, screening, and services for at-risk pregnant women as well as families and caregivers supporting individuals with FASD.

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来源期刊
BMC Proceedings
BMC Proceedings Biochemistry, Genetics and Molecular Biology-Biochemistry, Genetics and Molecular Biology (all)
CiteScore
3.50
自引率
0.00%
发文量
6
审稿时长
10 weeks
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