CAREPAL-8:姑息关怀中家庭照护者多维负担的简易筛查工具。

IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Anneke Ullrich, Corinna Bergelt, Gabriella Marx, Anne Daubmann, Gesine Benze, Julia Heine, Lisa-Marie Dickel, Feline Wowretzko, Youyou Zhang, Carsten Bokemeyer, Friedemann Nauck, Karin Oechsle
{"title":"CAREPAL-8:姑息关怀中家庭照护者多维负担的简易筛查工具。","authors":"Anneke Ullrich, Corinna Bergelt, Gabriella Marx, Anne Daubmann, Gesine Benze, Julia Heine, Lisa-Marie Dickel, Feline Wowretzko, Youyou Zhang, Carsten Bokemeyer, Friedemann Nauck, Karin Oechsle","doi":"10.1186/s12904-024-01480-w","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Family caregivers of terminally ill and dying people do not only experience varying levels but also different dimensions of caregiver-related strain and burden. The aim of the study was to develop a short multidimensional screening tool for the detection of burden in family caregivers in palliative care.</p><p><strong>Methods: </strong>Family caregivers of cancer patients newly admitted to specialist inpatient palliative care (N = 232) completed questionnaires on psychological burden, quality of life, social support and need fulfillment. A latent class mixture model was used to identify discrete classes of family caregivers related to their multidimensional caregiver burden. Multinomial logistic regression analyses were performed to identify the most predictive items from a set of established questionnaires.</p><p><strong>Results: </strong>Four latent classes of family caregivers were identified: Currently stable caregivers (37%), Caregivers with unmet needs (20%), Psychologically burdened caregivers (30%), and High-risk caregivers (13%). Each of these classes describes a different risk profile of multidimensional family caregiver burden, although family caregivers exhibit high levels of distress across all classes. From a set of 48 items, we identified eight items that predicted the class membership best. These items represent the items of the novel multidimensional screening tool: The 8-item Screening Tool for Family Caregiver Burden in Palliative Care (CAREPAL-8). Except for social support, the items maintained fidelity to the conceptualization of multidimensional caregiver burden used in this study. A preliminary classification system was developed, which has yet to be validated.</p><p><strong>Conclusions: </strong>This study represents the first step in the establishment of a practical, self-administered screening tool that might help healthcare providers to tailor caregiver care according to their burden in daily practice. Brevity of the 8-item tool might facilitate its use in routine clinical care.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5000,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11295689/pdf/","citationCount":"0","resultStr":"{\"title\":\"The CAREPAL-8: a short screening tool for multidimensional family caregiver burden in palliative care.\",\"authors\":\"Anneke Ullrich, Corinna Bergelt, Gabriella Marx, Anne Daubmann, Gesine Benze, Julia Heine, Lisa-Marie Dickel, Feline Wowretzko, Youyou Zhang, Carsten Bokemeyer, Friedemann Nauck, Karin Oechsle\",\"doi\":\"10.1186/s12904-024-01480-w\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Family caregivers of terminally ill and dying people do not only experience varying levels but also different dimensions of caregiver-related strain and burden. The aim of the study was to develop a short multidimensional screening tool for the detection of burden in family caregivers in palliative care.</p><p><strong>Methods: </strong>Family caregivers of cancer patients newly admitted to specialist inpatient palliative care (N = 232) completed questionnaires on psychological burden, quality of life, social support and need fulfillment. A latent class mixture model was used to identify discrete classes of family caregivers related to their multidimensional caregiver burden. Multinomial logistic regression analyses were performed to identify the most predictive items from a set of established questionnaires.</p><p><strong>Results: </strong>Four latent classes of family caregivers were identified: Currently stable caregivers (37%), Caregivers with unmet needs (20%), Psychologically burdened caregivers (30%), and High-risk caregivers (13%). Each of these classes describes a different risk profile of multidimensional family caregiver burden, although family caregivers exhibit high levels of distress across all classes. From a set of 48 items, we identified eight items that predicted the class membership best. These items represent the items of the novel multidimensional screening tool: The 8-item Screening Tool for Family Caregiver Burden in Palliative Care (CAREPAL-8). Except for social support, the items maintained fidelity to the conceptualization of multidimensional caregiver burden used in this study. A preliminary classification system was developed, which has yet to be validated.</p><p><strong>Conclusions: </strong>This study represents the first step in the establishment of a practical, self-administered screening tool that might help healthcare providers to tailor caregiver care according to their burden in daily practice. Brevity of the 8-item tool might facilitate its use in routine clinical care.</p>\",\"PeriodicalId\":48945,\"journal\":{\"name\":\"BMC Palliative Care\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.5000,\"publicationDate\":\"2024-08-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11295689/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"BMC Palliative Care\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1186/s12904-024-01480-w\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"BMC Palliative Care","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s12904-024-01480-w","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0

摘要

背景:身患绝症和濒临死亡者的家庭照护者不仅经历着不同程度的照护者相关压力和负担,而且还经历着不同维度的压力和负担。本研究旨在开发一种简短的多维度筛查工具,用于检测姑息治疗中家庭照护者的负担:方法:新入院接受姑息治疗专科住院治疗的癌症患者的家庭照护者(N = 232)填写了有关心理负担、生活质量、社会支持和需求满足的问卷。采用潜类混合模型确定了与照顾者多维负担相关的家庭照顾者离散类别。通过多项式逻辑回归分析,从一套既定的调查问卷中找出了最具预测性的项目:结果:确定了家庭照顾者的四个潜在类别:目前情况稳定的照顾者(37%)、需求未得到满足的照顾者(20%)、心理负担重的照顾者(30%)和高风险照顾者(13%)。尽管家庭照顾者在所有类别中都表现出较高的痛苦程度,但每个类别都描述了家庭照顾者多维负担的不同风险特征。从 48 个项目中,我们确定了 8 个最能预测类别成员资格的项目。这些项目代表了新型多维筛查工具的项目:姑息治疗中家庭照顾者负担的 8 项筛选工具(CAREPAL-8)。除社会支持外,这些项目与本研究中使用的多维度照护者负担概念保持一致。初步的分类系统已经建立,但还有待验证:本研究是建立实用、自制筛查工具的第一步,该工具可帮助医疗服务提供者在日常工作中根据护理负担情况为护理者提供量身定制的护理服务。该工具由 8 个项目组成,简洁明了,有助于在日常临床护理中使用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The CAREPAL-8: a short screening tool for multidimensional family caregiver burden in palliative care.

Background: Family caregivers of terminally ill and dying people do not only experience varying levels but also different dimensions of caregiver-related strain and burden. The aim of the study was to develop a short multidimensional screening tool for the detection of burden in family caregivers in palliative care.

Methods: Family caregivers of cancer patients newly admitted to specialist inpatient palliative care (N = 232) completed questionnaires on psychological burden, quality of life, social support and need fulfillment. A latent class mixture model was used to identify discrete classes of family caregivers related to their multidimensional caregiver burden. Multinomial logistic regression analyses were performed to identify the most predictive items from a set of established questionnaires.

Results: Four latent classes of family caregivers were identified: Currently stable caregivers (37%), Caregivers with unmet needs (20%), Psychologically burdened caregivers (30%), and High-risk caregivers (13%). Each of these classes describes a different risk profile of multidimensional family caregiver burden, although family caregivers exhibit high levels of distress across all classes. From a set of 48 items, we identified eight items that predicted the class membership best. These items represent the items of the novel multidimensional screening tool: The 8-item Screening Tool for Family Caregiver Burden in Palliative Care (CAREPAL-8). Except for social support, the items maintained fidelity to the conceptualization of multidimensional caregiver burden used in this study. A preliminary classification system was developed, which has yet to be validated.

Conclusions: This study represents the first step in the establishment of a practical, self-administered screening tool that might help healthcare providers to tailor caregiver care according to their burden in daily practice. Brevity of the 8-item tool might facilitate its use in routine clinical care.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信