通过向 "我们所有人 "参与者提供数字通信,让他们参与健康研究摘要。

IF 4.7 2区 医学 Q1 COMPUTER SCIENCE, INFORMATION SYSTEMS
Janna Ter Meer, Royan Kamyar, Christina Orlovsky, Ting-Yang Hung, Tamara Benrey, Ethan Dinh-Luong, Giorgio Quer, Julia Moore Vogel
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引用次数: 0

摘要

目的:健康研究摘要可以作为一种补充方式,为参与者提供价值回报。我们评估了研究参与者如何通过电子邮件交流参与摘要,以及如何改进这种方式:我们从 "我们所有人 "研究计划的 305 626 名参与者(其中 77% 被归类为生物医学研究中代表性不足的人)的纵向数据集中研究了人口统计亚群与参与度之间的相关性。我们将其与其他项目交流的参与情况进行比较,并利用影响评估(N = 421 510)来衡量通过以下方式定制交流的效果:(1)激发内容偏好;(2)以西班牙语为重点的内容;(3)信息视频;以及(4)电子邮件主题行中的文章内容:在 2020 年 3 月至 2021 年 10 月期间,67% 的注册参与者收到了研究摘要,超过了其他项目宣传(60%)和结果返还(31%),后者的接受率较高,但仅限于一部分符合条件的参与者。虽然所有人口亚群都参与了研究摘要,但收入较高、受教育程度较高、白人和 45 岁以上的参与者打开和点击内容的频率最高。在电子邮件主题行中出现文章内容和以西班牙语为重点的内容对参与度有负面影响。视频和社交媒体内容以及征询偏好会使点击率有小幅上升:讨论:要提高参与度,可能还需要进一步个性化定制(例如,根据既定偏好提供多篇文章,扩大偏好选项)。鉴于我们的点击率衡量标准比较粗略,我们的研究结果很可能只是对参与效果的保守表述:健康研究摘要有望成为一种向研究参与者回报价值的方式,尤其是在无法回报个人层面结果的情况下。个性化交流需要进行测试,以确定是否达到了预期效果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Engagement with health research summaries via digital communication to All of Us participants.

Objective: Summaries of health research can be a complementary way to return value to participants. We assess how research participants engage with summaries via email communication and how this can be improved.

Materials and methods: We look at correlations between demographic subgroups and engagement in a longitudinal dataset of 305 626 participants (77% are classified as underrepresented in biomedical research) from the All of Us Research Program. We compare this against engagement with other program communications and use impact evaluations (N = 421 510) to measure the effect of tailoring communication by (1) eliciting content preferences, (2) Spanish focused content, (3) informational videos, and (4) article content in the email subject line.

Results: Between March 2020 and October 2021, research summaries reached 67% of enrolled participants, outperforming other program communication (60%) and return of results (31%), which have a high uptake rate but have been extended to a subset of eligible participants. While all demographic subgroups engage with research summaries, participants with higher income, educational attainment, White, and older than 45 years open and click content most often. Surfacing article content in the email subject line and Spanish focused content had negative effects on engagement. Video and social media content and eliciting preferences led to a small directional increase in clicks.

Discussion: Further individualization of tailoring efforts may be needed to drive larger engagement effects (eg, delivering multiple articles in line with stated preferences, expanding preference options). Our findings are likely a conservative representation of engagement effects, given the coarseness of our click rate measure.

Conclusions: Health research summaries show promise as a way to return value to research participants, especially if individual-level results cannot be returned. Personalization of communication requires testing to determine whether efforts are having the expected effect.

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来源期刊
Journal of the American Medical Informatics Association
Journal of the American Medical Informatics Association 医学-计算机:跨学科应用
CiteScore
14.50
自引率
7.80%
发文量
230
审稿时长
3-8 weeks
期刊介绍: JAMIA is AMIA''s premier peer-reviewed journal for biomedical and health informatics. Covering the full spectrum of activities in the field, JAMIA includes informatics articles in the areas of clinical care, clinical research, translational science, implementation science, imaging, education, consumer health, public health, and policy. JAMIA''s articles describe innovative informatics research and systems that help to advance biomedical science and to promote health. Case reports, perspectives and reviews also help readers stay connected with the most important informatics developments in implementation, policy and education.
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