[德国自体免疫疾病跨学科中心]。

IF 0.9 4区 医学 Q4 RHEUMATOLOGY
Margitta Worm, Claudia Günther, Martin Claussen, Gernot Keyßer, Ina Kötter, Gabriela Riemekasten, Elise Siegert, Norbert Blank, Cord Sunderkötter, Gabriele Zeidler, Peter Korsten
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引用次数: 0

摘要

背景:治疗复杂的自身免疫性疾病患者需要跨学科医疗。尽管德国的自身免疫性疾病跨学科治疗中心数量不断增加,但这些中心尚未遍布全国,其重点和跨学科结构也没有按照普遍认可的标准进行组织。此外,它们也没有定期反映在一般的医疗结构中:材料和方法:以一个已建立的中心和一个临床病例为例,对护理结构进行分析,以证明内部标准化程序的实用性:为了确定德国自身免疫性疾病跨学科中心的现状,我们以一所大学医院为例进行了结构分析,并介绍了另一个中心的病例,以证明跨学科病人护理的重要性:结果:在大学医院选定的自身免疫性疾病中心,自身免疫性疾病患者接受来自不同学科专家的跨学科治疗。该中心的组织结构以组织结构图为基础。病例报告展示了对一名系统性硬化症和肺部受累患者的标准化诊断和治疗路径(标准化操作程序,SOP):文章讨论了某些自身免疫性疾病的综合诊断和治疗需要哪些跨学科措施,在实施过程中会遇到哪些挑战,以及与指南相比有哪些优势,因为除其他外,指南可以立即调整。最好能就自身免疫性疾病跨学科中心的结构、必要设置和患者护理的实施达成全国共识。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Interdisciplinary centers for autoimmune diseases in Germany].

Background: Interdisciplinary medical treatment is required to care for patients with complex autoimmune diseases. Although there are an increasing number of interdisciplinary centers for autoimmune diseases in Germany, they are not yet available throughout the country and the focuses and interdisciplinary structures are not organized according to a generally agreed standard. Furthermore, they are not regularly reflected in the general care structure.

The aim of the work: To analyze the care structure using as an example an established center and a clinical case to demonstrate the usefulness of in-house standardized procedures.

Material and methods: In order to determine the status quo regarding interdisciplinary centers for autoimmune diseases in Germany, a university hospital is exemplarily presented for a structural analysis and a case presentation from another center to demonstrate the importance of an interdisciplinary patient care.

Results: At the selected center for autoimmune diseases of the university hospital, patients with autoimmune diseases receive interdisciplinary care from experts from various disciplines. The structures are anchored in an organizational chart. The case report demonstrates a standardized diagnostic and therapeutic pathway (standardized operating procedures, SOP) in a patient with systemic sclerosis and lung involvement.

Discussion: The article discusses which measures are necessary across disciplines for comprehensive diagnostics and treatment of certain autoimmune diseases, which challenges arise during implementation and which advantages can arise compared to guidelines because, among other things, they can be immediately adapted. The establishment of a national consensus for the structure, necessary settings and implementation into patient care within an interdisciplinary center for autoimmune diseases is desirable.

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来源期刊
Zeitschrift fur Rheumatologie
Zeitschrift fur Rheumatologie 医学-风湿病学
CiteScore
2.20
自引率
20.00%
发文量
150
审稿时长
6-12 weeks
期刊介绍: Die Zeitschrift für Rheumatologie ist ein international angesehenes Publikationsorgan und dient der Fortbildung von niedergelassenen und in der Klinik tätigen Rheumatologen. Die Zeitschrift widmet sich allen Aspekten der klinischen Rheumatologie, der Therapie rheumatischer Erkrankungen sowie der rheumatologischen Grundlagenforschung. Umfassende Übersichtsarbeiten zu einem aktuellen Schwerpunktthema sind das Kernstück jeder Ausgabe. Im Mittelpunkt steht dabei gesichertes Wissen zu Diagnostik und Therapie mit hoher Relevanz für die tägliche Arbeit – der Leser erhält konkrete Handlungsempfehlungen. Frei eingereichte Originalien ermöglichen die Präsentation wichtiger klinischer Studien und dienen dem wissenschaftlichen Austausch.
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