规划路线:印度新生儿全面筛查计划》。

IF 4 Q1 GENETICS & HEREDITY
Seema Kapoor, Amit Kumar Gupta, B K Thelma
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引用次数: 0

摘要

印度每年有 2700 万新生儿,占全球分娩总数的五分之一,新生儿死亡人数约占全球的三分之一,在印度这样一个不断增长的经济体中整合卫生干预措施是一项挑战。虽然死亡率统计数字至关重要,但完整的存活率和早期预防保健,如新生儿筛查(NBS),才是最重要的。由于令人震惊的是,在邦/国家层面或授权计划中缺乏有关代谢错误确切负担的信息,因此我们采用公私合作模式,在德里邦招募的前瞻性新生儿队列中开展了一项 NBS 可行性研究(2014 年 11 月至 2017 年 4 月)。本报告讨论了在国家层面有效实施全民 NBS 的主要决定因素和遇到的局限性。生成筛查 "核心 "小组的数据、对医护人员的持续培训、向公众宣传新生儿筛查确保新生儿/社会健康的力量以及 "国家政策 "成为发展中国家的优先事项。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Charting the Course: Towards a Comprehensive Newborn Screening Program in India.

Integrating health interventions in a growing economy like India, with a birth cohort of 27 million/year, one-fifth of all childbirths, and approximately one-third of neonatal deaths globally, is a challenge. While mortality statistics are vital, intact survival and early preventive healthcare, such as newborn screening (NBS), are paramount. The appalling lack of information about the precise burden of metabolic errors at the state/national level or a mandated program encouraged a feasibility study of NBS in a prospective newborn cohort recruited in Delhi State (November 2014-April 2017) using a public-private partnership mode. The major determinants for effective implementation of universal NBS at the national level and limitations encountered are discussed in this report. Data to generate the 'core' panel for screening, sustained training of healthcare personnel, dissemination of the power of NBS to ensure neonatal/societal health to the public, and a 'national policy' emerge as priorities in a developing country.

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来源期刊
International Journal of Neonatal Screening
International Journal of Neonatal Screening Medicine-Pediatrics, Perinatology and Child Health
CiteScore
6.70
自引率
20.00%
发文量
56
审稿时长
11 weeks
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