Plutonormativity:说明辅助生殖和遗传学中的不公平现象。

Health law in Canada Pub Date : 2019-06-01
Josephine Johnston
{"title":"Plutonormativity:说明辅助生殖和遗传学中的不公平现象。","authors":"Josephine Johnston","doi":"","DOIUrl":null,"url":null,"abstract":"<p><p>Researchers and research subjects are reporting that the results of genetic testing, including testing conducted using sequencing technology, could inform reproductive decisions. Thus far unacknowledged are the out-of-pocket expenses often associated with genomics-enabled reproductive planning. These expenses will render this benefit of medical technology inaccessible to many people. No word currently exists for the mistaken assumption that the typical person has significant financial resources or the construction of policies and practices with that assumption baked in. In this essay, I propose the term \"plutonormativity\" to illuminate these often unacknowledged inequities. I then show how plutonormative thinking is operating in one particular context: access to reproductive planning within current discussions of the benefits of the genetic testing.</p>","PeriodicalId":79609,"journal":{"name":"Health law in Canada","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2019-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11261900/pdf/","citationCount":"0","resultStr":"{\"title\":\"Plutonormativity: Illuminating Inequities in Assisted Reproduction and Genetics.\",\"authors\":\"Josephine Johnston\",\"doi\":\"\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Researchers and research subjects are reporting that the results of genetic testing, including testing conducted using sequencing technology, could inform reproductive decisions. Thus far unacknowledged are the out-of-pocket expenses often associated with genomics-enabled reproductive planning. These expenses will render this benefit of medical technology inaccessible to many people. No word currently exists for the mistaken assumption that the typical person has significant financial resources or the construction of policies and practices with that assumption baked in. In this essay, I propose the term \\\"plutonormativity\\\" to illuminate these often unacknowledged inequities. I then show how plutonormative thinking is operating in one particular context: access to reproductive planning within current discussions of the benefits of the genetic testing.</p>\",\"PeriodicalId\":79609,\"journal\":{\"name\":\"Health law in Canada\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2019-06-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11261900/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health law in Canada\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health law in Canada","FirstCategoryId":"1085","ListUrlMain":"","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

研究人员和研究对象都报告说,基因检测(包括使用测序技术进行的检测)的结果可以为生殖决策提供依据。迄今为止,与基因组学辅助生殖计划相关的自付费用尚未得到承认。这些费用将使许多人无法享受医疗技术带来的好处。目前还没有一个词来描述这样一种错误的假设,即一般人都拥有雄厚的经济实力,也没有一个词来描述基于这种假设而制定的政策和做法。在这篇文章中,我提出了 "plutonormativity "一词,以阐明这些往往不为人知的不公平现象。然后,我将展示 "plutonormativity "思维是如何在一个特定的背景下运作的:在当前关于基因检测益处的讨论中,生殖计划的获取。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Plutonormativity: Illuminating Inequities in Assisted Reproduction and Genetics.

Researchers and research subjects are reporting that the results of genetic testing, including testing conducted using sequencing technology, could inform reproductive decisions. Thus far unacknowledged are the out-of-pocket expenses often associated with genomics-enabled reproductive planning. These expenses will render this benefit of medical technology inaccessible to many people. No word currently exists for the mistaken assumption that the typical person has significant financial resources or the construction of policies and practices with that assumption baked in. In this essay, I propose the term "plutonormativity" to illuminate these often unacknowledged inequities. I then show how plutonormative thinking is operating in one particular context: access to reproductive planning within current discussions of the benefits of the genetic testing.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信