从有姑息关怀需求的住院病人角度看关怀体验:一项使用病人报告体验测量法(PREM)的横断面研究。

IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Gursharan K Singh, Alison Mudge, Robyn Matthews, Patsy Yates, Jane L Phillips, Claudia Virdun
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引用次数: 0

摘要

背景改善住院患者的姑息关怀服务迫在眉睫。患者报告的体验测量(PREM)数据有助于确定需要重点改进的领域。本研究旨在描述有姑息关怀需求的住院患者所报告的关怀体验,为了解关怀体验基线提供信息,并确定需要改进的关键领域:方法:采用横断面研究设计,邀请有姑息关怀需求的住院患者填写 "consideRATE",这是一种患者报告的关怀体验测量方法,时间跨度为2022年的6个月。在澳大利亚一家大都市医院的肿瘤科、普通内科/肾科和普通内科/呼吸科病房(n = 3)接受姑息关怀治疗的住院患者接受了资格筛选。如果住院病人无法参与,照护者可提供代理答复。描述性统计用于分析定量评分,而自由文本回复则采用综合主题分析法进行分析:120名参与者(108名患者和12名护理人员)完成了consideRATE。回答 "非常好 "次数最多的问题是关注症状、关注感受和关注最重要的事情;回答 "非常好 "次数最少的问题是关注患者事务、期待什么和护理环境。近一半(n = 57,48%)的人表示,对病人事务的关注 "不适用于 "他们的住院治疗。对 8 个问题中的 532 个自由文本回答进行分析后得出的结论是:感受到支持、感受到知情、感受到倾听以及驾驭临床环境非常重要:让有姑息关怀需求的住院病人能够就他们的关怀体验提供反馈是确保改善对病人重要的方法之一。支持临床团队理解并使用这些数据来进行有针对性的改进,是这项多阶段研究的下一步工作。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experience of care from the perspectives of inpatients with palliative care needs: a cross-sectional study using a patient reported experience measure (PREM).

Background: Improving palliative care for inpatients is urgently needed. Data from patient-reported experience measures (PREM) can assist in identifying areas for focused improvement. This study aimed to describe patient reported experience of care in inpatients with palliative care needs, to inform a baseline understanding of care experience and identify key areas for improvement.

Methods: Cross-sectional study design where inpatients with palliative care needs were invited to complete 'consideRATE,' a patient reported experience measure of care, over six months in 2022. Inpatients with palliative care needs receiving care on an oncology, general medicine/renal and general medicine/respiratory ward (n = 3) at an Australian metropolitan hospital were screened for eligibility. Carers could provide proxy responses where inpatients were unable to participate. Descriptive statistics were used to analyse quantitative ratings, whilst free text responses were analysed using integrated thematic analysis.

Results: One-hundred and twenty participants (108 patients and 12 carers) completed consideRATE. The questions with the highest number of 'very good' responses were attention to symptoms, attention to feelings and attention to what matters most; the questions with the lowest number of 'very good' responses was attention to patients' affairs, what to expect, and the environment of care. Almost half (n = 57, 48%) indicated that attention to patients' affairs 'did not apply' to their inpatient stay. Analysis of 532 free text responses across 8 questions highlighted the importance of feeling supported, feeling informed, feeling heard and navigating the clinical environment.

Conclusion: Enabling inpatients with palliative care needs to provide feedback about their experience of care is one method of ensuring improvements matter to patients. Supporting clinical teams to understand and use these data to make tailored improvements is the next step in this multi-phase research.

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来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
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