从中风患者、非正式护理人员和治疗师的角度看瑞士家庭式中风康复技术的使用:定性访谈与焦点小组研究。

Q2 Medicine
Lena Sauerzopf, Andreas Luft, Valeria Maeusli, Verena Klamroth-Marganska, Michael Sy, Martina Rebekka Spiess
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引用次数: 0

摘要

背景:脑卒中是导致长期残疾的主要原因,既需要住院和门诊康复,也需要在家庭环境中进行自我训练。以技术为基础的工具正逐渐被接受,成为延长康复过程的额外和合适的选择。虽然其他国家已经对中风患者、治疗师和非正式护理人员在技术使用方面的经验进行了调查,但在瑞士,对这一主题的调查还很不够:我们旨在探索瑞士中风患者、非正式护理人员和治疗师在家庭环境中使用技术工具进行中风康复的经验和需求:本研究采用定性描述方法,包括半结构式访谈和焦点小组讨论。我们采用了演绎模板分析法以及可及性、适应性、责任性和参与性框架,来分析中风后康复技术辅助解决方案的定性数据集:我们收集了中风患者(7/23,30%)、非正式照护者(4/23,17%)和治疗师(职业和物理治疗师;12/23,52%)的经验和需求。我们用 4 个类别来组织分析和结果,分别是获得高质量康复的可及性、适应患者差异的能力、康复的责任性或依从性以及康复的参与性。中风患者表示,他们在康复过程中会根据自己的具体需求使用各种工具。他们认为有大量的工具可供选择,但有时在选择过程中会感到不知所措。非正式照护者表示,在整个康复过程中,他们普遍感到得不到充分的服务和信息。他们报告说,他们使用基于技术的工具来支持受中风影响的亲属变得更加独立。治疗师对技术工具在康复中的众多可能应用表示赞赏。但与此同时,他们对瑞士在费用范围、建议和培训机会方面缺乏明确性表示不满:结论:瑞士的中风患者、非正式照护者和治疗师在中风门诊康复中使用基于技术的工具方面有着不同和独特的经验和需求。书面建议、承担经济成本以及提供信息和教育可以增强患者和治疗师使用技术工具的信心。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Technology Use for Home-Based Stroke Rehabilitation in Switzerland From the Perspectives of Persons Living With Stroke, Informal Caregivers, and Therapists: Qualitative Interview and Focus Group Study.

Background: Stroke is a leading cause for long-term disability, requiring both inpatient and outpatient rehabilitation and self-training in the home environment. Technology-based tools are gradually gaining acceptance as additional and suitable options for extending the rehabilitation process. While the experiences of persons living with stroke, therapists, and informal caregivers with respect to technology use have already been investigated in other countries, this topic is underexplored in the Swiss context.

Objective: We aimed to explore the experiences and needs of persons living with stroke, informal caregivers, and therapists in using technology-based tools in a home environment for stroke rehabilitation in Switzerland.

Methods: This study followed a qualitative descriptive methodology, including semistructured interviews and focus group discussions. We applied a deductive template analysis alongside the accessibility, adaptability, accountability, and engagement framework to analyze the qualitative data sets for technology-assisted solutions for poststroke rehabilitation.

Results: We collected the experiences and needs of persons living with stroke (7/23, 30%), informal caregivers (4/23, 17%), and therapists (occupational and physical therapists; 12/23, 52%). The 4 categories we used to organize the analysis and results were accessibility to quality rehabilitation, adaptability to patient differences, accountability or compliance with rehabilitation, and engagement with rehabilitation. Persons living with stroke stated that they use various tools within their rehabilitation process depending on their specific needs. They felt that there is a plethora of tools available but sometimes felt overwhelmed with the selection process. Informal caregivers indicated that they generally felt underserved and insufficiently informed throughout the rehabilitation process. They reported that they use technology-based tools to support their relatives affected by stroke in becoming more independent. Therapists appreciate the numerous possible applications of technology-based tools in rehabilitation. At the same time, however, they express dissatisfaction with the lack of clarity in Switzerland regarding cost coverage, recommendations, and training opportunities.

Conclusions: Persons living with stroke, informal caregivers, and therapists in Switzerland reported varied and unique experiences and needs with the use of technology-based tools in outpatient stroke rehabilitation. Written recommendations, the assumption of financial costs, and the provision of information and education could foster increased confidence in the use of technology-based tools for patients and therapists.

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来源期刊
CiteScore
4.20
自引率
0.00%
发文量
31
审稿时长
12 weeks
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