女性对系统性红斑狼疮的认识:自我管理指南的影响

Mervat Amin ٍٍSayed, E. Sheha, Hanan Elzeblawy Hassan, Eman Hafez Ahmed
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摘要

背景:系统性红斑狼疮(SLE)是一种常见的长期自身免疫性疾病,需要为妇女量身定制自我保健策略,使她们能够积极管理自己的健康,并承担起控制疾病的责任。 目的:本研究旨在评估实施自我管理指南对妇女认识系统性红斑狼疮的影响。设计:准实验性研究。环境:参与者来自新达米埃塔爱资哈尔大学医院的风湿病学和产前门诊。研究对象:对患有不同症状和体征的成年女性(18-45 岁)进行有目的的抽样调查。收集数据时使用了以下四种工具:工具一是结构化访谈问卷,分为两部分,用于评估妇女的个人特征及其病史和产科史。工具二是妇女对系统性红斑狼疮的认识。工具三是简明疼痛量表(BPI)。工具四是残疾指数量表。结果这项研究发现,67.7%的妇女对系统性红斑狼疮疾病的认识令人满意,72.3%的妇女能够根据指南进行自我管理。此外,妇女还获得了足够的知识,并在日常生活中增加了积极的做法。结论自我管理指南增强了妇女的知识,也改善了日常生活,并反映在疼痛的减少和残疾指数的增加上。建议:持续开展针对系统性红斑狼疮女性患者的教育计划,以改善她们的健康状况。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Women's Awareness Regarding Systemic Lupus Erythematous: Impact of Self- Management Guidelines
Background: Systemic Lupus Erythematosus (SLE) is a common long-term autoimmune disease calls for self-care strategies tailored to enable women to actively manage their health and presume responsibility for disease control Aim: This study aimed to evaluate the impact of implementing self-management guidelines on the women's awareness regarding SLE. Design: A quasi-experimental designed study. Settings: the participants were recruited from the Rheumatology and antenatal outpatient clinics at Al-Azhar University Hospital in New Damietta. Subjects: A purposive sample was conducted on adult female women (18-45 years old), that suffer from different signs and symptoms of disease . Four tools were employed for gathering of data as follows : Tool I was a structured interview questionnaire divided into 2 parts to assess personal characteristics of the women and their medical and obstetric history. Tool II was women's awareness knowledge about SLE. Tool III was The Brief Pain Inventory (BPI) scale. Tool IV was disability index scale. Results: This study found that 67.7% of women had satisfactory knowledge about SLE disease, 72.3% were able to self-management post guidelines, statistically significant differences in improving knowledge, pain interference, and disability index post application of the self-management guidelines were found. Also, women acquired sufficient knowledge, and an increase in positive daily life practices was observed. Conclusion: The self-management guidelines reinforced the women's knowledge also improved daily life and reflected in decreased pain and increased disability index. Recommendations: Ongoing educational programs for females with SLE in order to enhancing their health status.
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