让痴呆症患者参与研究会议和活动:多角度的见解

Ellen Snowball, Christine Aiken, Myrna Norman, Wayne Hykaway, Zoe Dempster, Inbal Itzhak, Emily McLellan, Katherine S. McGilton, Jennifer Bethell
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引用次数: 0

摘要

这篇透视文章从有痴呆症生活经历的人、研究人员、受训人员、观众和其他人的角度,介绍了让有痴呆症生活经历的人参与研究会议和活动的经验。我们概述了不同活动中的参与实例,并介绍了一个由有生活经验者发起的视频项目,该项目传达了关于成为加拿大衰老神经退行性病变联盟(CCNA)年度合作伙伴论坛和科学日活动中不可或缺的合作者的各种观点。我们还报告了来自受众的评估数据,并介绍了一系列促进这种参与的技巧和策略,包括支持有亲身经历者的实际考虑因素。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Engaging people with lived experience of dementia in research meetings and events: insights from multiple perspectives
This perspective article describes the experiences of engaging people with lived experience of dementia in research meetings and events from the perspectives of people with lived experience, researchers, trainees, audience members and others. We outline examples of engagement from different events and describe a video project, initiated by people with lived experience, conveying diverse views about becoming integral collaborators in the Canadian Consortium on Neurodegeneration in Aging (CCNA) annual Partners Forum and Science Days. We also report evaluation data from audiences and present a series of tips and strategies for facilitating this engagement, including practical considerations for supporting people with lived experience.
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