脑瘫儿童和青少年康复护理路径:适应意大利国情的独特性

Children Pub Date : 2024-07-13 DOI:10.3390/children11070852
S. Faccioli, S. Sassi, Emanuela Pagliano, Cristina Maghini, Silvia Perazza, M. F. Siani, Giada Sgherri, G. M. Farella, M. Foscan, Marta Viganò, S. Sghedoni, Arianna Valeria Bai, G. Borelli, Adriano Ferrari
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引用次数: 0

摘要

背景:2020 年,一个多专业小组与意大利抗击中风基金会家庭协会合作成立,旨在为 2-18 岁脑瘫患者的管理和神经运动康复提出循证建议,并在意大利的临床实践中实施。方法:这些护理路径的建议是根据美国脑瘫和发育医学学会的护理路径开发指南以及建议分级评估开发和评价工作组(GRADE-ADOLOPMENT)制定的,用于采纳、调整或重新开发高质量指南中的建议。结果:在综合管理方面提出了四项强有力的积极建议,在神经运动治疗方面提出了 24 项建议。结论:综合的、个性化的方法得到了肯定,既包括多维度的患者资料,也包括与学校的跨学科管理网络,其中儿童和青少年是一个整体。根据粗大运动功能和徒手能力分类系统的预后参考曲线,所有运动康复方法都必须因人而异,将与年龄和发育相适应的活动作为干预措施和目标。干预措施必须根据对儿童技能的分析,对任务和/或环境(物体和环境)进行调整,以提高儿童的积极性并避免其产生挫败感。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Care Pathways in Rehabilitation for Children and Adolescents with Cerebral Palsy: Distinctiveness of the Adaptation to the Italian Context
Background: In 2020, a multiprofessional panel was set up in collaboration with the Italian FightTheStroke Foundation family association to produce evidence-based recommendations for the management and neuromotor rehabilitation of persons with cerebral palsy aged 2–18 years to implement in clinical practice in Italy. Methods: The recommendations of these care pathways were developed according to the American Academy for Cerebral Palsy and Developmental Medicine guidelines for Care Pathways Development and the Grading of Recommendations Assessment Development and Evaluation working group for adoption, adaptation, or de novo development of recommendations from high-quality guidelines (GRADE-ADOLOPMENT). Results: Four strong positive recommendations were developed regarding comprehensive management, and twenty-four addressed neuromotor treatment. Conclusions: A holistic, individualized approach was affirmed in terms of both multidimensional patient profile and interdisciplinary management in a network with the school where children and adolescents are integrated. It was defined that all motor rehabilitation approaches must be individually tailored considering age and developmentally appropriate activities as interventions and goals, in light of the reference curves addressing prognosis for Gross Motor Function and Manual Ability Classification Systems. Intervention must be structured with adaptations of the task and/or of the context (objects and environment) based on the analysis of the child’s skills to support motivation and avoid frustration.
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