向患者及其家属说明真相所面临的挑战：定性研究

IF 0.4 Q4 ONCOLOGY

International Journal of Cancer Management Pub Date : 2024-07-14 DOI:10.5812/ijcm-146075

Soore Khaki, Mohammad Ali Hosseini, F. Mohammadi-shahboulaghi, Gülbeyaz Can, Masoud Fallahi-Khoshknab

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引用次数: 0

摘要

背景：医疗服务提供者说真话的问题至关重要，它涉及法律和伦理问题。研究目的本研究旨在调查患者、家属和医疗服务提供者对披露真相的看法和偏好，以确定这一重要沟通方面的障碍。研究方法通过有目的的抽样，共招募了 27 名参与者（4 名患者、7 名家属、4 名医生和 12 名护士）。通过深入的半结构式访谈收集数据，并通过定性主题分析进行分析。结果如下数据中出现了三个主主题和八个次主题：(1) 真相冲击：患者无法面对真相，家属无法处理真相；(2) 治疗和康复期间的保密：对患者和家属隐瞒关键信息；家属对患者病情的困惑；家属阻止向患者披露真相；家属担心真相对患者的影响；(3) 患者的知情权：患者缺乏对自身权利的认识；向患者告知病情的重要性。结论：本研究的结果表明，医疗服务提供者可以采用基于文化、患者偏好和伦理价值观的方法，更有效、更令人满意地向患者及其家属传达坏消息。

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Challenges of Truth-telling to Patients and Their Families: A Qualitative Study

Background: The issue of truth-telling by healthcare providers is critically important, and it has legal and ethical implications. Objectives: This study was conducted to investigate the perceptions and preferences of patients, families, and healthcare providers related to truth disclosure to identify barriers to this important aspect of communication. Methods: A total of 27 participants (4 patients, 7 family members, 4 physicians, and 12 nurses) were recruited by purposeful sampling. Data were collected through in-depth, semi-structured interviews and analyzed by qualitative thematic analysis. Results: Three main themes and eight sub-themes emerged from the data: (1) truth shock: Patient inability to face the truth, family inability to handle the truth; (2) secrecy during treatment and recovery: Withholding critical information from patients and families; family confusion about the patient’s condition; families preventing truth disclosure to the patient; family fear of the truth’s impact on the patient; and (3) patient's right to information: Lack of patient awareness of their rights; the importance of informing patients about their condition. Conclusions: The findings of this study suggest that healthcare providers can deliver bad news to patients and their families more effectively and satisfyingly using an approach based on culture, patient preferences, and ethical values

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来源期刊

International Journal of Cancer Management ONCOLOGY-

CiteScore

1.10

自引率

0.00%

发文量

期刊介绍： International Journal of Cancer Management (IJCM) publishes peer-reviewed original studies and reviews on cancer etiology, epidemiology and risk factors, novel approach to cancer management including prevention, diagnosis, surgery, radiotherapy, medical oncology, and issues regarding cancer survivorship and palliative care. The scope spans the spectrum of cancer research from the laboratory to the clinic, with special emphasis on translational cancer research that bridge the laboratory and clinic. We also consider original case reports that expand clinical cancer knowledge and convey important best practice messages.