{"title":"脑瘫儿童家庭照顾者的生活质量及其决定因素：印度的一项研究","authors":"Manasi S. Vaidya, Vijay K. Domple","doi":"10.4103/pmrr.pmrr_87_23","DOIUrl":null,"url":null,"abstract":"\n \n \n The responsibility of caring for a child with cerebral palsy (CP) at home can be challenging to the caregiver’s and children’s quality of life (QoL). This study was designed to assess the QoL and its determinants amongst family caregivers of children with CP.\n \n \n \n A study was conducted in a Tertiary Care Hospital in Yavatmal, Maharashtra, from March to May 2021, involving 126 participants selected through systematic random sampling. QoL was assessed using the World Health Organization QoL Brief Version scale. The data were analyzed using the statistical software, Epi Info Version 7.2.\n \n \n \n The mean ± standard deviation of the overall QoL of family caregivers of CP children was 66.7 ± 1.44. The study found a significant association of QoL with the age of the caregiver, residence, education, socio-economic class, total number of children, health insurance and accessibility of services.\n \n \n \n More than half of the study participants exhibited low overall, physical, social and environmental QoL, influenced by various determinants.\n","PeriodicalId":517020,"journal":{"name":"Preventive Medicine: Research & Reviews","volume":"29 7","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2024-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Quality of Life of the Family Caregivers of Children with the Cerebral Palsy and its Determinants: A Study from India\",\"authors\":\"Manasi S. Vaidya, Vijay K. Domple\",\"doi\":\"10.4103/pmrr.pmrr_87_23\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"\\n \\n \\n The responsibility of caring for a child with cerebral palsy (CP) at home can be challenging to the caregiver’s and children’s quality of life (QoL). This study was designed to assess the QoL and its determinants amongst family caregivers of children with CP.\\n \\n \\n \\n A study was conducted in a Tertiary Care Hospital in Yavatmal, Maharashtra, from March to May 2021, involving 126 participants selected through systematic random sampling. QoL was assessed using the World Health Organization QoL Brief Version scale. The data were analyzed using the statistical software, Epi Info Version 7.2.\\n \\n \\n \\n The mean ± standard deviation of the overall QoL of family caregivers of CP children was 66.7 ± 1.44. The study found a significant association of QoL with the age of the caregiver, residence, education, socio-economic class, total number of children, health insurance and accessibility of services.\\n \\n \\n \\n More than half of the study participants exhibited low overall, physical, social and environmental QoL, influenced by various determinants.\\n\",\"PeriodicalId\":517020,\"journal\":{\"name\":\"Preventive Medicine: Research & Reviews\",\"volume\":\"29 7\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2024-07-15\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Preventive Medicine: Research & Reviews\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.4103/pmrr.pmrr_87_23\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Preventive Medicine: Research & Reviews","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4103/pmrr.pmrr_87_23","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
摘要
在家中照顾脑瘫（CP）患儿的责任可能会对照顾者和患儿的生活质量（QoL）带来挑战。本研究旨在评估 CP 患儿家庭照顾者的 QoL 及其决定因素。 研究于 2021 年 3 月至 5 月在马哈拉施特拉邦 Yavatmal 的一家三级护理医院进行，通过系统随机抽样选出了 126 名参与者。采用世界卫生组织 QoL 简明版量表对参与者的 QoL 进行评估。数据采用 Epi Info 7.2 版统计软件进行分析。 CP 儿童家庭照顾者的总体 QoL 平均值（± 标准差）为 66.7 ± 1.44。研究发现，QoL 与照顾者的年龄、居住地、教育程度、社会经济阶层、子女总数、医疗保险和服务的可及性有很大关系。 受各种决定因素的影响，半数以上的研究参与者在总体、身体、社会和环境方面的 QoL 都较低。
Quality of Life of the Family Caregivers of Children with the Cerebral Palsy and its Determinants: A Study from India
The responsibility of caring for a child with cerebral palsy (CP) at home can be challenging to the caregiver’s and children’s quality of life (QoL). This study was designed to assess the QoL and its determinants amongst family caregivers of children with CP.
A study was conducted in a Tertiary Care Hospital in Yavatmal, Maharashtra, from March to May 2021, involving 126 participants selected through systematic random sampling. QoL was assessed using the World Health Organization QoL Brief Version scale. The data were analyzed using the statistical software, Epi Info Version 7.2.
The mean ± standard deviation of the overall QoL of family caregivers of CP children was 66.7 ± 1.44. The study found a significant association of QoL with the age of the caregiver, residence, education, socio-economic class, total number of children, health insurance and accessibility of services.
More than half of the study participants exhibited low overall, physical, social and environmental QoL, influenced by various determinants.
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