作为 IDEAL 计划的一部分接受访谈的少数族裔痴呆症患者护理者的观点

IF 2 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Christina R. Victor, Eleanor van den Heuvel, Claire Pentecost, Catherine Quinn, Catherine Charlwood, Linda Clare
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引用次数: 0

摘要

战后从加勒比海和印度次大陆(孟加拉国、印度和巴基斯坦)移民到英国的人现在正经历着老年痴呆症等老年相关疾病的发病。我们记录痴呆症患者家庭照顾者经历的定量和定性证据基础主要来自对欧洲白人、北美人和澳大拉西亚人的研究。因此,痴呆症护理领域的研究需要反映出英国老年人口种族身份的日益多样化。通过半结构式访谈,我们调查了英国加勒比海黑人、非洲黑人和南亚人(印度人、巴基斯坦人和孟加拉人)社区中 18 名痴呆症患者护理者的经历。参与者是从 "加入痴呆症研究 "平台上招募的,主要是女性代际照护者。我们确定了以下三个主题:照护的动机(花时间陪伴照护对象和互惠)、照护的积极和消极后果(奖励和后果)以及照护的文化背景(支持照护的文化规范和价值观以及对痴呆症的消极态度)。我们的研究结果发展了现有的文献,确定了(a)花时间陪伴他们所照顾的人的重要性,(b)没有信仰作为照顾的驱动力,以及(c)看着父母的健康状况不断恶化所带来的挑战。我们强调了不同的护理动机是如何相互交织和动态变化的。在我们的数据集中,义务和互惠与积极和消极的照顾经历之间的联系说明了这一点。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perspectives of Minority Ethnic Caregivers of People with Dementia Interviewed as Part of the IDEAL Programme

Postwar migrants from the Caribbean and Indian subcontinent (Bangladesh, India, and Pakistan) to the UK are now experiencing the onset of age-related diseases such as dementia. Our evidence base, both quantitative and qualitative, documenting the experiences of family caregivers of people with dementia is largely drawn from studies undertaken with white European, North American, and Australasian populations. Consequently, there is a need for research in the field of dementia caregiving to reflect the increasing diversity in ethnic identities of the older adult population of the UK. Using semistructured interviews, we investigated the experiences of 18 caregivers of people with dementia in Black Caribbean, Black African, and South Asian (Indian, Pakistani, and Bangladeshi) communities in England. Participants were recruited from the Join Dementia Research platform and were predominantly female intergenerational carers. We identified the following three themes: motivation to care (spending time with the care recipient and reciprocity), positive and negative consequences of caregiving (rewards and consequences), and the cultural context of caregiving (cultural norms and values supporting caregiving and negative attitudes towards dementia). Our findings develop existing literature by identifying (a) the importance of spending time with the person they care for, (b) the absence of faith as a caregiving driver, and (c) the challenge of watching the declining health of a parent. We highlight how the different motivations to care are intertwined and dynamic. This is illustrated by the linking of obligation and reciprocity in our dataset and positive and negative experiences of caregiving.

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来源期刊
CiteScore
4.50
自引率
8.30%
发文量
423
期刊介绍: Health and Social Care in the community is an essential journal for anyone involved in nursing, social work, physiotherapy, occupational therapy, general practice, health psychology, health economy, primary health care and the promotion of health. It is an international peer-reviewed journal supporting interdisciplinary collaboration on policy and practice within health and social care in the community. The journal publishes: - Original research papers in all areas of health and social care - Topical health and social care review articles - Policy and practice evaluations - Book reviews - Special issues
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