跌倒的日常性:脑瘫成人在整个生命过程中的后果和管理。

IF 2.1 4区 医学 Q1 REHABILITATION
Disability and Rehabilitation Pub Date : 2025-03-01 Epub Date: 2024-07-12 DOI:10.1080/09638288.2024.2376346
Sonali Shah, Anthony Avery, Ruth Bailey, Brian Bell, Neil Coulson, Richard Luke, Janice McLaughlin, Pip Logan
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引用次数: 0

摘要

目的:探讨脑瘫(CP)成人在整个生命过程中跌倒的原因、影响因素和后果,以及如何处理这一问题:我们使用了英国一项多方法研究中的访谈数据,该研究探讨了老年脑瘫患者在整个生命过程中的影响和医疗保健。我们招募了 26 名参与者,并使用各种数字平台对他们进行了访谈,以最大限度地扩大英国的包容性参与。后续的电子邮件半结构式访谈进一步探讨了跌倒的经历。对转录的访谈内容进行了专题分析:对样本中一半以上的参与者来说,跌倒和害怕跌倒(FoF)是个问题。他们认为跌倒和跌倒恐惧限制了他们在就业、社会和文化活动中的参与、自主性和独立性。由于管理或预防跌倒的专业干预措施或从业人员知识有限,参与者使用自己的管理策略。使用轮椅或避免参加活动等做法促使他们的人际关系和身份发生变化:结论:与普通人相比,患有脑瘫的成年人跌倒发生的时间较早。预防跌倒的专业服务可帮助患有脊髓损伤的成年人保持肌肉力量和平衡。需要开展研究,以评估针对脊髓灰质炎患者的有效干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The everydayness of falling: consequences and management for adults with cerebral palsy across the life course.

Purpose: To explore the cause, influences and consequences of falling for adults with cerebral palsy (CP) across their life course, and how this is managed.

Materials and methods: We used interview data from a multimethod UK study exploring the effects of ageing with CP and healthcare across the life course. Twenty-six participants were recruited and interviewed using various digital platforms to maximise inclusive participation in the UK. Follow-up email semi-structured interviews were conducted to further explore experiences of falls. Transcribed interviews were analysed thematically.

Results: Falling and fear of falling (FoF) is problematic for over half of the participants in the sample. They perceived falls and FoF as limiting their participation, autonomy and independence in employment, social and cultural activities. Participants used their own management strategies, due to limited specialist interventions or practitioner knowledge to manage or prevent falls. Practices, such as the use of a wheelchair or avoiding activities prompted changes to relationships and identity.

Conclusions: Falling for adults with CP happens earlier in life compared to the general population. Adults with CP may benefit from specialist falls prevention services to help maintain muscle strength and balance. Research is needed to evaluate effective interventions for people with CP.

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来源期刊
Disability and Rehabilitation
Disability and Rehabilitation 医学-康复医学
CiteScore
5.00
自引率
9.10%
发文量
415
审稿时长
3-6 weeks
期刊介绍: Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.
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