利益之争:数字健康与本土数据主权。

IF 12.4 1区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Ashley Cordes, Marieke Bak, Mataroria Lyndon, Maui Hudson, Amelia Fiske, Leo Anthony Celi, Stuart McLennan
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引用次数: 0

摘要

数字健康正越来越多地促进开放健康数据。尽管这种开放方式带来了许多好处,但也导致了与世界各地土著人民领导的土著数据主权运动之间的紧张关系,这些土著人民主张控制健康数据的使用,将其作为自决的一部分。数字医疗在改善土著社区获得服务的机会和提供更好的医疗成果方面发挥着作用。然而,我们认为,为了做到有效和合乎道德,该领域必须更多地考虑到原住民的权利和利益。我们讨论了数据采集、管理、分析和整合方面的挑战和可能的改进,因为它们与世界各地土著社区的健康息息相关。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Competing interests: digital health and indigenous data sovereignty
Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world who are asserting control over the use of health data as a part of self-determination. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities. However, we argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples´ rights and interests. We discuss challenges and possible improvements for data acquisition, management, analysis, and integration as they pertain to the health of Indigenous communities around the world.
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来源期刊
CiteScore
25.10
自引率
3.30%
发文量
170
审稿时长
15 weeks
期刊介绍: npj Digital Medicine is an online open-access journal that focuses on publishing peer-reviewed research in the field of digital medicine. The journal covers various aspects of digital medicine, including the application and implementation of digital and mobile technologies in clinical settings, virtual healthcare, and the use of artificial intelligence and informatics. The primary goal of the journal is to support innovation and the advancement of healthcare through the integration of new digital and mobile technologies. When determining if a manuscript is suitable for publication, the journal considers four important criteria: novelty, clinical relevance, scientific rigor, and digital innovation.
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