COMPAs 是一款旨在支持长期护理环境中的痴呆症患者与其护理人员之间沟通的应用程序:混合方法实施研究。

IF 5 Q1 GERIATRICS & GERONTOLOGY
JMIR Aging Pub Date : 2024-07-04 DOI:10.2196/47565
Ana Inés Ansaldo, Michèle Masson-Trottier, Barbara Delacourt, Jade Dubuc, Catherine Dubé
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引用次数: 0

摘要

背景:痴呆症患者会丧失自主能力,每天都需要照顾者的支持。痴呆症患者的交流能力会逐渐下降,从而导致他们与照顾者之间的交流减少和孤独,对双方的生活质量都会产生负面影响。由此给照顾者带来的压力和负担使他们特别容易产生职业倦怠:本研究旨在考察 "交流辅助工具"(COMPAs)的功效,这是一款按照以人为本和情感交流原则设计的应用程序,旨在改善痴呆症患者和护理人员的生活质量,减轻护理人员的负担:在这项实施研究中,2 家长期护理机构的志愿护理人员(17 人)接受了使用 COMPAs 和改善与痴呆症患者沟通策略的培训。在使用 COMPAs 干预 8 周前后,完成了定性和定量分析、半结构式访谈和问卷调查:半结构式访谈显示,所有护理人员都认为 COMPAs 干预后产生了积极影响,即提高了痴呆症患者和护理人员的沟通质量和生活质量。生活质量的改善还体现在《一般健康问卷-12》(General Health Questionnaire-12 scores)得分的显著降低(改善的照顾者:9/17,53%;z=2.537;P=.01)。COMPAs 干预措施还与个人成就感的增加有明显的统计学关联(护理人员的个人成就感有所提高:11/17,65%;t=2.537;P=01):11/17,65%;t15=2.430;P=.03;d=0.61 [中等效应大小]):尽管大多数照顾者不熟悉技术,但COMPAs干预通过在二人关系中发展以人为本的沟通、增加同理心和减轻照顾者的负担,改善了痴呆症患者及其照顾者的福祉。这些结果为在长期护理环境中采取 COMPAs 干预措施带来了希望。针对不同人群、不同环境和不同痴呆症阶段的更大规模小组对照研究将更清楚地说明 COMPAs 干预措施的益处。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Efficacy of COMPAs, an App Designed to Support Communication Between Persons Living With Dementia in Long-Term Care Settings and Their Caregivers: Mixed Methods Implementation Study.

Background: Persons living with dementia experience autonomy loss and require caregiver support on a daily basis. Dementia involves a gradual decline in communication skills, leading to fewer interactions and isolation for both people living with dementia and their caregivers, negatively impacting the quality of life for both members of the dyad. The resulting stress and burden on caregivers make them particularly susceptible to burnout.

Objective: This study aims to examine the efficacy of Communication Proches Aidants (COMPAs), an app designed following the principles of person-centered and emotional communication, which is intended to improve well-being in persons living with dementia and caregivers and reduce caregiver burden.

Methods: In this implementation study, volunteer caregivers in 2 long-term care facilities (n=17) were trained in using COMPAs and strategies to improve communication with persons living with dementia. Qualitative and quantitative analyses, semistructured interviews, and questionnaires were completed before and after 8 weeks of intervention with COMPAs.

Results: Semistructured interviews revealed that all caregivers perceived a positive impact following COMPAs interventions, namely, improved quality of communication and quality of life among persons living with dementia and caregivers. Improved quality of life was also supported by a statistically significant reduction in the General Health Questionnaire-12 scores (caregivers who improved: 9/17, 53%; z=2.537; P=.01). COMPAs interventions were also associated with a statistically significant increased feeling of personal accomplishment (caregivers improved: 11/17, 65%; t15=2.430; P=.03; d=0.61 [medium effect size]).

Conclusions: COMPAs intervention improved well-being in persons living with dementia and their caregivers by developing person-centered communication within the dyad, increasing empathy, and reducing burden in caregivers although most caregivers were unfamiliar with technology. The results hold promise for COMPAs interventions in long-term care settings. Larger group-controlled studies with different populations, in different contexts, and at different stages of dementia will provide a clearer picture of the benefits of COMPAs interventions.

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来源期刊
JMIR Aging
JMIR Aging Social Sciences-Health (social science)
CiteScore
6.50
自引率
4.10%
发文量
71
审稿时长
12 weeks
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