患有慢性疾病的大学生的信息披露经历

Shannon E. Dier, R. Ravert
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摘要

患有慢性疾病的新成人在开始更加独立地管理自己的病情时,必须反复做出有关信息披露的决定。在这项混合方法研究中,患有慢性疾病的大学生(25 人)讲述了他们的一次信息披露决策经历,并完成了生活满意度、主观幸福感和疾病接受度的测量。定性分析调查了披露决定的背景以及对披露所表达的总体态度。有关信息披露的决定是在与大学工作人员、朋友和同伴以及在工作中做出的。确定了三种披露态度:主动、开放和被动。探索性定量分析显示,与持开放或主动态度的大学生相比,持被动披露态度的大学生在生活满意度、幸福感和疾病接受度方面均较低。研究结果表明,患有慢性疾病的新兴成年人面临着独特的信息披露环境,并表明不同的信息披露方式以不同的方式与幸福感相关联。本文讨论了研究和实践的意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Disclosure Experiences of College Students With Chronic Medical Conditions
Emerging adults with chronic medical conditions must navigate repeated decisions about disclosure as they begin to manage their condition more independently. In this mixed-methods study, college students with chronic medical conditions ( N = 25) provided a narrative of a disclosure decision-making experience and completed measures of life satisfaction, subjective well-being, and illness acceptance. Qualitative analysis investigated contexts for disclosure decisions and overall attitudes toward disclosure expressed. Decisions regarding disclosure occurred with university personnel, friends and peers, and at work. Three disclosure attitudes were identified: proactive, open, and reactive. Exploratory quantitative analysis revealed that college students with reactive attitudes toward disclosure reported lower life satisfaction, well-being, and illness acceptance than peers with open or proactive attitudes. Results demonstrate the unique contexts of disclosure faced by emerging adults with chronic conditions and suggest distinct approaches to disclosure are associated with well-being in different ways. Implications for research and practice are discussed.
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